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Needing to establish link with anxiety

We are currently trying to develop a standard of therapy for anxiety for individuals with hypothyroidism. We need a general background info on how many individuals actually experience anxiety however. Please take a few minutes to answer these questions


1) When were you diagnosed?

2) Have you had adjustments made to the dosages and types of your medication due to the fluctuation of the hormones?

3) If yes, indicate approximately how often?

Weekly
Biweekly
Monthly
Bimonthly
6 Months

4) Before you were diagnosed did you experience bouts of depression?
      If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months


5) Before you were diagnosed did you experience bouts of fatigue?
      If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months

6) Before you were diagnosed did you experience bouts of anxiety?
      If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months

7) Would you have wanted to seek help for your depression/anxiety or did you find it manageable on your own?


8) Did you seek help for your depression/anxiety?


9) After being diagnosed and before beginning the course of your medication did you experience: depression, fatigue, anxiety?


10) Do you experience depressive states even while taking your medication?
If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months


11) Do you experience fatigue even while taking your medication?
      If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months

12) Do you experience anxiety even while taking your medication?
      If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months

13) Do you experience a fluctuation in your emotional states (i.e. do you get depressed, anxious) and then find that you need a medication adjustment?
If yes indicate how often:
Weekly
Biweekly
Monthly
Bimonthly
6 Months



14) What are the most debilitating symptoms of your condition?

15) Have you ever been treated for anxiety? When were you treated? Before/after your hypothyroid diagnosis?


16) What course of treatment were you offered? Which did you find most helpful?




12 Responses
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Avatar universal
1) When were you diagnosed?
With hypothyroism?  Within the first year of my life.   With anxiety?  I have not been formally diagnosed with it, but I am pretty sure that I have it.

2) Have you had adjustments made to the dosages and types of your medication due to the fluctuation of the hormones?
Yes, constantly.

3) If yes, indicate approximately how often?

Monthly

4) Before you were diagnosed did you experience bouts of depression?
      If yes indicate how often:

I was too young to realize it.  I was an infant.

5) Before you were diagnosed did you experience bouts of fatigue?
      If yes indicate how often:

I was too young to realize it.  I was an infant.

6) Before you were diagnosed did you experience bouts of anxiety?
      If yes indicate how often:

I was too young to realize it.  I was an infant.

7) Would you have wanted to seek help for your depression/anxiety or did you find it manageable on your own?

I have been able to tolerate it for a number of years, and after years of dosage changes, I have an appointment coming up to get on other medication for anxiety.

8) Did you seek help for your depression/anxiety?

I will be soon.

9) After being diagnosed and before beginning the course of your medication did you experience: depression, fatigue, anxiety?

I was too young to realize it.  I was an infant.

10) Do you experience depressive states even while taking your medication?
If yes indicate how often:

Biweekly

Anxiety, daily.

11) Do you experience fatigue even while taking your medication?
      If yes indicate how often:

Weekly (daily)

12) Do you experience anxiety even while taking your medication?
      If yes indicate how often:

Weekly (daily)


13) Do you experience a fluctuation in your emotional states (i.e. do you get depressed, anxious) and then find that you need a medication adjustment?

Not sure.  It seems the doctors pay more attention to lab results when changing doses.

14) What are the most debilitating symptoms of your condition?

Sleep deprivation.  Loss of sex drive.  Restlessness.  Fatigue.

15) Have you ever been treated for anxiety? When were you treated? Before/after your hypothyroid diagnosis?

Will be treated after.

16) What course of treatment were you offered? Which did you find most helpful?

Have not begun nor found a helpful solution.
Helpful - 0
219522 tn?1251760629
1. Diagnosed hypo 4/30/07

2. Had dosage changes, dependant on labs. Only have taken Synthroid, currently on 88 mcg.

3. I am treated by my PCP, and she has run labs at 4 and 6 weeks, or sooner if I call with symptoms.

4. I have Hashimoto's. I never suffered depression until January 2007. Then I let it go on until April when I was diagnosed.

5. I would experience normal fatigue at the end of the day or when ill with a cold/virus--in other words, at normal times. Again, back in January 2007 I was whammied with an overwhelming fatigue that was with me from the moment I got out of bed until... always.

6. I would experience panic attacks at different stages of my life since childhood. Usually around high stress periods: onset of menses, marriage/buying house, being a first-time mother, mother going into nursing home.

7. I would suffer along with the panic attacks until I couldn't take it any longer: then I would see my PCP and he prescribed tranxene. I would take for about 6 mos or so, then stop and I would be ok.

8. Yes: see above #7 for anxiety. Yes on depression: after 4 months of uncharacteristic depression, I saw PCP and was found hypo.

9. Had depression and fatigue before diagnosis. After taking synthetic hormone, depression gone. Fatigue still hanging around. Had anxiety initially upon diagnosis, but has subsided with time and meds.

10. No

11. Yes I still experience fatigue even after being on Synthroid for 6 months. Not sure if it is thyroid related as I have low B12, low ferratin/red blood cells and tooth infection.

12. Haven't had a panic attack (anxiety) in quite a while, but again, it has historically come upon me during times of great stress.

13. If I start getting "weepy" and it's not right before my period, then it's a good sign that I need my meds changed.

14. Most debilitating symptoms are the fatigue and GERD.

15. See above #7. Long before hypo diagnosis.

16. The doctor prescribed Synthroid. It seems to be doing the trick. At the moment my lab work is normal. I think had I known more then, I would have requested Levoxyl because it has fewer ingredients. I have queried my PCP about Cytomel (T3), but she consulted 2 endos who say reports of cytomel vs placebos gave same results, plus my T3 labs were well within range.

I am happy to help with thyroid research in any capacity; however, keeping in mind that most of us who are hypo suffer from "brain fog," I think maybe you could revise your survey a little bit. Some of it is redundant and very long for us to deal with. Maybe breaking it up into sections would help.

Good luck!
Helpful - 0
213044 tn?1236527460
I'm not going to answer your questions individually. Sorry, too much trouble.

I experienced anxiety and depression as my thyroid problem developed. My Hypo diagnosis came about because I went to the doctor with complaints of anxiety and disturbing heart symptoms.

that was three years ago. I have been hypo and Hyper dozens of time, it seems, since then and have had MANY med changes, some gradual, some immediate or in quick succession.

I was given anti-anxiety meds by the second GP I went to seeking treatment, as well as different Thyroid meds. I didn't ask for them. He told me I NEEDED them, so I took them. Later, I discussed anti-depressants with him and also with an Endo. They both told me anti-depressants were out, because they would mess with tests they wanted to do.

My GP was honest enough to say he was sorry about the anti-depressants, because the anti-anxiety meds would not help depression one bit, but that was the best he could do for me. I'm not comfortable with the idea of taking anti depressants anyway, so I have been limping along on anti-anxiety meds without complaint.

Quite frankly I would have killed myself a year ago without the meds. My depression was that bad. I even went to a therapist, but he had more mental issues than I did, so that was short lived. Both conditions wax and wain even though I am on Alprazolam. It's bearable, but I have been known to bawl like a little girl in my GP's exam room.

I was never like that before my Thyroid went wonky.

The first Endo I saw was ambivalent about the Alprazolam, but was emphatic that I was not to take anti-depressants.

The second Endo I saw didn't comment one way or the other about the Alprazolam.

Even with the help of drugs, I sometimes get anxious. I don't have anxiety attacks, but little things bother me. Loud noises, unexpected noises, violent or medical stuff I see on TV. Conversations with more than two other people present. A mild argument/disagreement between my wife and her mother (we all live together) grates on me like it never would have before. Trying to make decisions sometimes freaks me out.

I think anxiety goes hand in hand with Hypothroidism and Hyperthyroidism. Depression goes hand in hand with fluxuating thyroid levels. Degrees of both depend on the individual and the amount of hormone imbalance. Just my opinion.

I'm not a doctor, but I am living with my body. I never used to be this way. I have always been self-assured and in control. Well, I used to be.

Any Endo that does not recognize anxiety as part of the Thyroid disease package does not understand the disease very well. Same goes for GPs or PCPs.
Helpful - 0
Avatar universal
This may not be the most scientific way to go about gathering information, BUT bravo to anyone interested in bettering the care offered to patients with thyroid disorders (or any disorder for that matter).  The best healthcare workers I have ever met in my life shared similar traits.  They were all knowledgable in their fields, but what set them apart from others was their humanity...their caring for their patients as people.  And their listening skills.

Go for it cannotrecall!  Whether future psychologist or physician, your sense of caring will serve you well.

As far as people that post on boards having more anxiety than others, I don't think I've ever noticed that.  Boards are certainly a good place to gather information through shared experience.  I'm sure posters with current medical issues may be anxious.  But it seems many stay on long after things have stablized because of the sense of connection and community.
Helpful - 0
97628 tn?1204462033
This is not the most scientific way to go about this. People who post on message boards tend to have more anxiety than people with the same conditions that don't.
You will not get a realistic picture of what percenatge do experience it or how bad or frequnt it is on those who do.
Helpful - 0
Avatar universal
One other comment:  I LOVE what you said re:  getting medicated for anxiety symptoms without your G.P. or endocrinologist treating you like a junkie begging for a fix.

My GP had given me ativan before he got the labs showing my hypothyroidism.  When I went to the endo who put me on the levoxyl, I told her I was on the ativan.  She said "I don't want to know anything about THAT.  If you need ativan, go back to the the doctor that gave it to you the first time!"

I found this incredible!  I'm pretty sure that anxiety is a common symptom of both hyper and hypo thyroid imbalances.  I would think (HOPE) any endo would KNOW THIS!  Also, I would think they would want to the physician prescribing any meds related to the condition.  It would be a way of measuring response to treament!  (It least is is in my case).

Good luck with your research!  Hope your mom finds relief to her symptoms soon.
Helpful - 0
Avatar universal
1.  dx 8/07
2.  still in the process of finding correct dosage
3.  approx. every 4 weeks
4.  no
5.  no
6.  YES!!  Began experiencing high levels of anxiety (for no apparent reason) daily, along with panic attacks.  The panic attacks are what prompted me to go to GP.  Labwork picked up hypo problem.  Please note:  in 6/04, I became severly hyPERactive and was dx'd with Graves.  It came on suddenly (after a surgery) and symptoms included severe anxiety and panic attacks. I needed ativan to function.  Once lab numbers improved, anxiety disappeared (both during hyper and hypo). For me, it seems an imbalance in either direction is accompanied by anxiety.
7.  N/A
8.  Yes...both times.  It was in seeking help for the anxiety that I discovered the thyroid imbalances.
9.  Yes - depression, I believe in not knowing what was causing severe anxiety (and having to convince drs that you're not a drug addict begging for anti-anxiety meds!).  Also had insomnia pre dx for both hyper and hypo.  Sleep deprivation only worsens the anxiety/depression.  Vicious cycle.
10.  No
11.  Yes.  Daily fatigue, especially by mid-afternoon.  Hoping right dosage/and body settling in will fix this.
12.  No, anxiety has pretty much gone away since levels have come down.
13.  Too soon to say as I only recently have started thyroid treatment.  BUT....should I begin to experience anxiety/panic attack symptoms again, I will IMMEDIATELY suspect thyroid medication adjustment needed.  The anxiety is my "warning alarm".   I've even told my husband to be on the lookout.  (When I'm in a high anxiety state, I don't trust myself to think rationally...my husband is my back up!)
14.  Currently (still fiddling with labs and dosing)...extreme mid-day fatigue (must lay down); sudden arthritis-type joint pain, back pain, muscle aches (never had until after starting levoxyl); aching/heavy legs (especially thighs); fluid retention (squishy...joints feel tight like when you've had too much salt/chinese food!); rapid unexplained weight gain.
15.  See #'s 6 & 7.  Severe anxiety symptoms just prior to dx of Grave's (hyper) and then again prior to dx of hypo.  Both times received meds (ativan) to treat anxiety prior to labs dx'ing thyroid disorder.  In both instances, once thyroid was stablized, anxiety meds no longer needed.
16.  Ativan.  What I found MOST helpful was a suggestion to take low dose of ativan on a regular basis (say three times a day...upon waking; mid afternoon; and before bed) rather than waiting for a major anxiety (panic) attack.  It absolutely helped to keep me on a more even keel.  It allowed me to get some sleep...which broke that horrible cycle of sleep deprivation feeding anxiety feeding depression, etc. etc.  I did that until my thyroid levels got a bit more stable.  It's kind of like how you should take pain med after a surgery.  Don't wait until the pain is BAD.  Take the med on a regular basis to prevent the extreme pain.
Hope this helps!
Cheryl H
Helpful - 0
Avatar universal
1. July 2006
2. yes
3. once last month
4.no
5. weekly
6. weekly
7.I did not seek help and I suffered for six months and seriously contemplated suicide before I found out what was wrong with me.
8. no
9. yes
10. monthly
11.weekly
12. weekly
13. once last month
14. anxeity and fatigue
15. yes, after I was diagnosed
16. My doc gave me some Ativan for panic attacks last month. I was also tried on ssri's but so far they make the anxiety worse.
Helpful - 0
168348 tn?1379357075
Thanks for the background.  I think it is a great way to get your info and with your intentions stated I really hope many on the board will help you out with your project!  I will take a look myself but I never had anxiety symptoms with hypo .. only hyper .... so I cannot personally help you out ... I think anxiety with hypo is way less common than hyper ?  Just want to be certain it is anxiety and hypo you are looking for?

I'll try to bump up your thread when it gets lower down on the board for those to take a look & help you out .. it is so frustrating to get answers when those who can help the most dodge you!

Cheryl
Helpful - 0
Avatar universal
p.s. I actually wouldnt have been so impersonal with the survey but I have made posts about this in other forums asking people for some form of instant messenger info so i could do this in a more private and personal fashion, and even offered an email adress but I got no response. If you find that this survey is too personal to post about I would be glad to interview you personally over a messenger or even through email, at the time which is convenient for you. it wont take long.
Helpful - 0
Avatar universal
I am university student graduating with a psychology bachelors. We is my advisor and myself. Reason I am doing this... My mom has been hypothyroid for a while and completely exhausted by her anxiety, but her doctors, as is very common, are doing nothing for it. I am planning on entering medical school next year, but whichever occupation I hold hypothyroidism is at the top priority for me in terms of well being of my patients. I am trying to establish this link for my thesis so I can do research in this. I have resorted to forums because for months i have been begging endocrinologists to call me back to arrange myself doing this survey in person, and not a single one can pull his finger out of his place where the sun dont shine to even note that I am talking about a very very bad symptom they have to treat. I assume that many patients are very angry at the fact that their symptoms get ignored, and I assume that they would be glad to do a sort of quid pro quo when it concerns their health. You tell me about yourself, i will do my damnest to make this a more noticed issue, which could be medicated without your G.P. or endocrinologist treating you like a junkie begging for a fix (mom's experience), and take your condition seriously.
Helpful - 0
168348 tn?1379357075
Interesting post .. who is the "we" ?  For an organization? Individual? Schoolwork? Research?  Just curious before answering anything like this ?

C~
Helpful - 0
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