diffuse sclerosine strain od papillary thyroid cancer

[odemt]

hi there
im in Ireland
three weeks ago i surgery ,had a tumour removed and full thyroidectomy.
after wards the surgeon was very happy and said the cancer was contained within the tumour and had not spread
had a cat scan last week and was given the iodine prep to drink which as it turns out i should not have been given,drank 2 glasses of it and then it was whipped away and i was given water. anyway the long and short of it is this has delayed my RAI treatment by about 8 weeks.
still i wasnt worried too much.
yesterday i got a call saying histology showed my papillary cancer was the diffuse sclerosine type and i had to go to another specialist this fri and i may require more surgery
also how long of a time is there supposed to be between a cat scan and RAI treatment
im absolutely terrified now and worried about rearing my 3 children
im 38years old

[pep88]

I don't have any experience other than to relate to your cancer and TT (mine was pap cancer with follicular variant).  Nor do I have the ability to give you advice about your situtation.  But I did want you to know that I do like Irish people!  Who doesn't?  :-)  And I'm thinking about you and wishing you a speedy recovery!

[odemt]

Thanks for that.Im so glad to have found this forum too. Have a lovely weekend

[odemt]

wow great to get a reply from someone I was beginning to get paranoid and think no one likes Irish people.
Met another consultant today and he had a good feel about and said everything feels good. cat scan shows normal lymph nodes so they are doing an isotopic scan in 4 weeks to compare and see if there is any change in activity.
they will then decide what to do but i think they will push for surgery to remove lymph nodes,
because of my sister dying last year they are being very careful of me
she got anaplastic thyroid cancer and passed away this time last year after a 6 week illness
I meant to ask and I wonder can one cancer turn into another
anyway thanks so much for sending me a message
Gail

[Applecore]

Hi:  I don't have any advice but I want you to know that you are in my prayers and I am glad you found this forum as the people on it are great and will love on you and help you through all that you are having problems.   Remember the Lord is with you and will help you and guide you through all of this.  He will make a way for you.   love linda

[utahmomma]

Argh - you have the right to smack whomever gave you the iodine prep upside the head!!

First of all, contrast medium for CT scans will prevent you from having RAI for 6 months.   I just asked my hospital's nuclear medicine department last week because I really need an abdominal CT scan but I seem to also be having a recurrence and will need another dose of RAI this fall so no CT scan for me.  :-(  Was it the contrast medium they gave you (can be liquid or IV but is radioactive) or was it iodine (without the radiation).  Contrast is a 6-month rule out, iodine would be about 2-months.

I wasn't that familiar with the DSV form of papillary carcinoma so I did some medical article searches.  DSV is a more aggressive form of papillary carcinoma and frequently has metastises to the lymph nodes and sometimes lungs.  That's the down side.  The good thing about it is, it's still papillary carcinoma and RAI is highly effective in locating it and killing it.   Yes, it is recommended that you have a neck dissection (removal of lymph nodes) and RAI.  Are they talking about surgery first then RAI or surgery after the scan to see if there is anything in the lymph nodes (before removing them)?

I'm so sorry you are going through all of this.   Stay strong - still a very, VERY high cure rate!!!

Utahmomma
papillary carcinoma '03
recurrence and RAI '06 and possibly '08
three sisters with papillary carcinoma (one with metastases to breasts and lymph)

[nissah46]

Contrast agents in CT scans may contain iodine. That is why you can't have one too close to your RAI.
Trish