Anyone with TgAb and TSI antibodies w/in range TSH?

[borninquisitive]

Long story short, 2 years ago I became very ill. Having periods of hyperthyroidism but mostly hypo. After "run-around" with doctors and eventually some tests, it was thought I had dealt with transient thyroiditis. My TSH has been anywhere from 1.+ to 3.70
I would say my TgAb is/was only marginally elevated. A year after symptoms: 47, then down to 43 and recently to 41 (upper RR is 40). However, on my own accord, I ordered a TSI test and it was marginally elevated at 134.

In the beginning, 2 doctors thought it was "in my head." Never-the-less, thus far my TSH has not moved out of range. I'm just wondering if others have/have had labs similar to mine?

~Kate

[borninquisitive]

AR-10,

I took a look at the link and it appears to be written by patients/patient advocates. When it comes to Wiki articles-keep in mind that they can be written by anybody and edited by anybody. Not to say information is wrong but good to know, never-the-less. I followed their links-many good sites posted. It'll keep me busy for a-while. lol

The merck reference was in regards to the table, on that page.

~Kate

[borninquisitive]

Rite760,

I think we feel very much the same way. Isn't it something to be told, "It's in your head." I thought I was cracking. I didn't know what was going on, other than it was. It was a nightmare.
Fortunately for you, you finally found an Endo that recognizes that you have something going on...but I know, it's no fun waiting things out. I wonder if doctors ever think about those who've complained about this and eventually do move "out of range." Do their symtoms only stand for something at that point?
I think science has a way to go before they get this condition better understood.

Sorry that you are going through this. Best to you, too!

~Kate

[borninquisitive]

Kit,

Curious but did you ever have thyroid antibodies run (TPO/TgAb)?

Actually, I did utilize healthcheckusa but do not have access where I live (an island). In taking vacations outside of town, I took the opportunity of utilizing hc while I had the chance. It's a wonderful service...I just wish all labs were "participants."

If you go through hc...keep in mind code 12345 to take 10% off your order. ;-D

I'm with you...I hope I never experience that kind of hyper phase again! Knock on wood, I have never experienced it to the extent that I did in the beginning.
I have to say, in getting the results back (T.S.I.)....my first thought was, "NO!"

Thyroid hemorrhaging...that is a nasty thought. In the beginning, I had an atrocious sore throat that lasted many months. In feeling my thyroid, there were two "gushy" spots. I asked my daughter to feel (I didn't tell her why) and tell me what she thought. She noted both places as well.

What I find odd, is that is seems less and less doctors are performing physical exams. Anyway.

I agree with your wanting a TSI check. It's good to know. I will try to convince my doctor to look into mine again. Not holding my breath on that one. lol

~Kate

[AR-10]

The link I was reading this morning is here;

http://graves.medshelf.org/Lab_Tests

I don't know how credible the link is, but it looked acceptable. Seems to come from the Merck manual about five years ago.

[Rite760]

Hi, I'm just like you, swinging from hyper to hypo. And my TSH swings to borderline for both, with normal ranges in between. I have battled with docs for nearly a year now, who kept telling me it was all in my head! But I have finally seen an endo who has recognised I have a thyroid problem but cannot treat it until it settles down fully into hypo. I absolutely hate my symptoms so I imagine you do too. I long for the day when it settles and I can get treatment. So I just wanted to say, it's not in your head, don't let them make you think it is. It's a real struggle and I'm not there yet myself. But don't give up. Good luck!

[kitcurious]

Hi Kate!

Your TSI result must be concerning, but at least you are forewarned, know the possibility is there and you have the experience- know what to look for.

My endo is not in a small town but has never run a TSI on me. He said I had a too low TSH and elevated I-123 so the "TSI would not be useful."  It would be to me. It would give me a better idea whether or not "the hyper"  may just happen all over again.

If you can persuade your docs to order follow-up TSI it would be great. If not, healthcheckUSA does them, but I think they are about 100.00.  Don't quote me on that, it may be a little less than that. I am going to ask my doc to do one anyway and if he resists I'll just chuck over the 100 bucks.

I hope you never have to experience that hyperthyoid horror again. Never!!

Yes, I am feeling better since it's been "normal" for a while and just hope it lasts.
I did once read that the pain in the throat is sometimes when the nodule hemorrahges into itself (yech).

Thank you so much for asking.
Kit

[borninquisitive]

AR do you have the site on hand? I brought the results to my doctor and she admitted that she didn't know what the TSI was! Assumed that being only mildly elevated-no big deal.
Dr. Lupo suggested it be tested again and I agree but antibody testing is something that our small town docs (all of 3) don't seem to like to check. In part, I understand but for peace of mind...it would be nice to see antibodies reduce in numbers.

The last few TSH tests, I've called them right. When at 3.70 I was experiencing extreme fatigue (at least, by my standards) and muscle/joint aches. The start of April, my TSH was 1.8 (low normal FT3 & 4) and today, I'm again very fatigued and my hands, fore-arms, neck, feet and calfs ache and I'd wager...I've crept up close to a TSH of 3.+

Kit, I know there is no way one can miss hyper symptoms. In Jan. of 06 I felt very bad and in March, I was given a script for Paxil. My doctor was surprised by my change of personality. There was a near a solid month, I felt stuck to the "ceiling" (if you can relate). I swore I was headed to the funny farm. Never, ever in my entire life...did I feel or act that way. It wasn't just anxiety, it was like a 24x7x4 panic attack. I wouldn't wish this on my worst enemy.

As for my last test w/antibodies (which included TSI): I wouldn't say I felt hyper. The only difference was hand tremors, feeling uneasy in the morning, periodic elevated HR/BP (my doctor sent me for a heart test: tach) "loose" BMs. Outside of that, I wasn't feeling too bad.

Currently, I am on Lexapro for depression. I brought it up to my doctor and knew it wasn't transient (like the anxiety was).

Anyway. Sorry for rambling and thank you both for responding. I appreciate it. I hope you both are feeling better these days!!

~Kate

[kitcurious]

I read that from Merck once as well.
Probably best to have regular screening, not fixate, and just enjoy being healthy for as long as it lasts, hopefully forever. :-)
No way to miss hyper symptoms. If it happens you will know.

[AR-10]

A TSI of 134 may be slightly above limit, but anything above 2 is not "normal".

Hate to be the bearer of bad news, but I was reading that just this morning. Hopefully, your TSH will behave for another twenty years or so.

Your TGab dropping is nice to see, though. :-)