Aa
Very high TSH
have you ever heard of a THS level coming back the the 200's before?
thank you all for the support and good advice!! I'll keep you posted as the weeks progress. thank you again!!
Hi,
If you are planning to get pregnant your TSH and thryoid hormones will need to be well regulated. Your target TSH (to get pregnant) should be about 1.0. Then once you are pregnant they need to test your FT3 and FT4 every month and adjust your meds to make sure that these levels are maintained at high normal.
Best wishes.
If you are planning to get pregnant your TSH and thryoid hormones will need to be well regulated. Your target TSH (to get pregnant) should be about 1.0. Then once you are pregnant they need to test your FT3 and FT4 every month and adjust your meds to make sure that these levels are maintained at high normal.
Best wishes.
Glad to hear that you got everything you needed done and that you are being taken care of.
I too had a TSH of over 200, 5 months post-pardum. In 6 weeks, TSH was normal and almost too low. Stay in contact with your endo and ask LOTS of questions about getting pregnant again. Did they test you for thyroid antibodies?
Good luck!
I too had a TSH of over 200, 5 months post-pardum. In 6 weeks, TSH was normal and almost too low. Stay in contact with your endo and ask LOTS of questions about getting pregnant again. Did they test you for thyroid antibodies?
Good luck!
OH YEAH!
Good news is good. :o)
Test every six weeks until your hormone levels are normal, and don't be afraid to call the Endo. He may not want to see you for six months, but you can call him as often as you like and ask questions or request bloodwork.
Good news is good. :o)
Test every six weeks until your hormone levels are normal, and don't be afraid to call the Endo. He may not want to see you for six months, but you can call him as often as you like and ask questions or request bloodwork.
Good news!! I went to the endo on Friday. He looked over my information and we visited a bit. He was also surprised that I have so few symptoms. He checked me over and did another ultrasound.
His conclusion was that I have a small goiter and I"m hypo. He's keeping me on 150MCG of levothoraxin. I did have a small mass on one side, but he said it wasn't large enough to even biopsy. So we'll keep an eye on it.
So I will get my TSH re tested in 6 weeks and I will see the endo again in 6 months.
He was fairly confident that my levels should be back or close to normal in 6-8 weeks.
And that I will be able to get pregnant within the next six months, as long as my levels are down.
His conclusion was that I have a small goiter and I"m hypo. He's keeping me on 150MCG of levothoraxin. I did have a small mass on one side, but he said it wasn't large enough to even biopsy. So we'll keep an eye on it.
So I will get my TSH re tested in 6 weeks and I will see the endo again in 6 months.
He was fairly confident that my levels should be back or close to normal in 6-8 weeks.
And that I will be able to get pregnant within the next six months, as long as my levels are down.
At least you know that your TSH is dropping because of the medication. That's a good start. Dropping over a hundred points so quickly is encouraging.
Good luck with the Endo tomorrow.
Good luck with the Endo tomorrow.
I got part of my results back-- my tsh is now 150 and my T3 was .6 Haven't heard about my T4 yet. See the Endocrinologist tomorrow.
I called my doctor and asked for my TSH to be redone. - and to also include the T3 and T4. Before I go to endo. on Friday. So this afternoon I will go to have my lab work done. I'll keep you posted on my results.
thank you so much for your insight. I feel a little more prepared to ask questions at my endo appointment. I've been wondering about retesting my TSH. they did also test my Pituitary and it was a little high, but they said not enough to worry about it. Could that be because of the demand the pituitary is putting on my thyroid? I'm not sure what that test was called.
It was rather poor form to put you on Thyroxin without even checking your hormone levels.
The test could have been an error.
Testing your Free T4 and Free T3 is how you measure the thyroid hormones. Testing your TSH tells you how much demand the pituitary gland is putting on the thyroid. Testing the hormone levels tells you what the thyroid is putting out.
I don't know why you don't feel horrible. Maybe because you are young? Everyone is a little different. A mother posted one day that her son had a TSH of over 800, and we all gasped. He was pretty sick.
The highest mine has been is 120.0, and that was enough for me. I was able to work about half a day, but I was not well.
You should be sick. Maybe your hormone levels are not as low as the TSH test indicates.
The Endo should test you for three or four different thyroid antibodies. Free T4 and Free T3 tests. Possibly discuss an uptake scan or FNA of the nodules depending on the specifics of the ultrasound results.
Good luck with your appointment.
Welcome to the forum. :o)
The test could have been an error.
Testing your Free T4 and Free T3 is how you measure the thyroid hormones. Testing your TSH tells you how much demand the pituitary gland is putting on the thyroid. Testing the hormone levels tells you what the thyroid is putting out.
I don't know why you don't feel horrible. Maybe because you are young? Everyone is a little different. A mother posted one day that her son had a TSH of over 800, and we all gasped. He was pretty sick.
The highest mine has been is 120.0, and that was enough for me. I was able to work about half a day, but I was not well.
You should be sick. Maybe your hormone levels are not as low as the TSH test indicates.
The Endo should test you for three or four different thyroid antibodies. Free T4 and Free T3 tests. Possibly discuss an uptake scan or FNA of the nodules depending on the specifics of the ultrasound results.
Good luck with your appointment.
Welcome to the forum. :o)
I don't feel that bad... I feel like a run down young mom. I am still active in adult league sports 2-3 times a week. It just seems like I should feel pretty bad and I don't??? Why?
My actual TSH level was 268.4. I have not had the T3 or T4 tests. I was put on 150 mcg of thoraxin (spelling??) I had an ultrasound and I did have a couple small nodules. I am schedule to see an endocrinologist on Friday. What will he be looking for or testing?
Now that I have scared you, I had another thought.
Did you also have a Free T4 test? Did you have a Free T3 test?
Those are the thyroid hormones and if your TSH is very high, your thyroid hormones should test very low. At which point you should be put on thyroid hormone replacement.
There is another condition that can cause a high TSH. There is a thyroid antibody called Thyroid Receptor antibodies. If you have thyroid receptor antibodies (TRab), they mimic TSH and attach to the THS receptors in your thyroid. The receptors get hogged up by the antibodies, and the TSH cannot find a place to bind to the receptors. That will make your TSH rise, even though your hormones may be within tolerable limits.
It is one of several different types of thyroid antibodies.
You should be tested for TPOab, TGab, and TRab if you have not had those tests run yet.
Do you know how your T4/T3 tests came out?
Are you on a thyroid medication?
Did you also have a Free T4 test? Did you have a Free T3 test?
Those are the thyroid hormones and if your TSH is very high, your thyroid hormones should test very low. At which point you should be put on thyroid hormone replacement.
There is another condition that can cause a high TSH. There is a thyroid antibody called Thyroid Receptor antibodies. If you have thyroid receptor antibodies (TRab), they mimic TSH and attach to the THS receptors in your thyroid. The receptors get hogged up by the antibodies, and the TSH cannot find a place to bind to the receptors. That will make your TSH rise, even though your hormones may be within tolerable limits.
It is one of several different types of thyroid antibodies.
You should be tested for TPOab, TGab, and TRab if you have not had those tests run yet.
Do you know how your T4/T3 tests came out?
Are you on a thyroid medication?
Yes.
It is not common, and can be very serious. You need to be on thyroid replacement meds right now, so it doesn't go any higher. I have seen posts from people with a TSH double that, but over 150 is risky, and could lead to you being in the ER unconcious.
you really shouldn't drive or be alone for long periods until you get that number cut way down. You can become mentally confused and the chance of slipping into a coma exists.
Not trying to scare you, but you need to understand that these things can happen.
It is not common, and can be very serious. You need to be on thyroid replacement meds right now, so it doesn't go any higher. I have seen posts from people with a TSH double that, but over 150 is risky, and could lead to you being in the ER unconcious.
you really shouldn't drive or be alone for long periods until you get that number cut way down. You can become mentally confused and the chance of slipping into a coma exists.
Not trying to scare you, but you need to understand that these things can happen.
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