Aa
Would it help if.............
If I go back and find out my thyroid is not "dead" completly (after 2years since RAI), would it be better to do another dose of RAI or have it removed and get it over with? Has anyone had this done or talked to anyone about it?
If it were me I would get it out.I dont the risks of going nuclear so many times,but it cant be good.
Of course go with your instincts and talk to your doc.
Keep posting how it goes for you
Love Venora
Of course go with your instincts and talk to your doc.
Keep posting how it goes for you
Love Venora
A friend of mine had 3 RAI treatments and is now findiding out that her thyroid is active again...Personally, I'd get the thing taken out so you don't have to deal with it anymore!
"Would it help" what? What is the reason you want another RAI?
Its medically stated that it is safe with up to 5 RAI. There are a lot of reasons why 1 131 doesn't work the first time (or second or third). Sometimes doctor underestimate the dosage amount for it is not an exact science, something could have interfered with the treatments effects, thyroid might reactivate from the remaining thyroid (which antibodies can still attack), and sometimes there are patients who just have tough thyroid. Also it might take years for full ablation to take effect. Non of the treatments are a 100% guarantee.
I have read in other forums a while ago, where people stated that their thyroid grew back after surgery. Nothing is a guarantee, likewise treatments.
Possibly surgery and then another RAI to ablate the remaining thyroid tissue(s) left, might be the better of the evils.
Thyroid surgeons tend to leave a portion of the thyroid intact, in order to avoid damaging parathyroid's or the nerve that runs through the thyroid that works the vocal chords. It wrap around the trachea and lies along the windpipe (trachea)
and are joined together by a narrow band of thyroid tissue, known as the isthmus.
Even with the most meticulous surgery, small amounts of thyroid tissue are often left behind to help preserve the integrity of critical structures that lie beneath the lobes of the thyroid. After surgery thyroid levels can fluctuate. Thyroid antibodies can persist in the blood circulation for 2-3 months and can cause effects on residual thyroid tissue, and thyroid tissue cells in which thyroid tissue can grow over time. It is important to have thyroid function tests done every month after surgery for at least the first six months. When levels are stable then thyroid function tests can be done every six months.
Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!
GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 - IED - Intermittent Explosive Disorder (Graves' Range)
2007 - A-ITP (suspect)
Its medically stated that it is safe with up to 5 RAI. There are a lot of reasons why 1 131 doesn't work the first time (or second or third). Sometimes doctor underestimate the dosage amount for it is not an exact science, something could have interfered with the treatments effects, thyroid might reactivate from the remaining thyroid (which antibodies can still attack), and sometimes there are patients who just have tough thyroid. Also it might take years for full ablation to take effect. Non of the treatments are a 100% guarantee.
I have read in other forums a while ago, where people stated that their thyroid grew back after surgery. Nothing is a guarantee, likewise treatments.
Possibly surgery and then another RAI to ablate the remaining thyroid tissue(s) left, might be the better of the evils.
Thyroid surgeons tend to leave a portion of the thyroid intact, in order to avoid damaging parathyroid's or the nerve that runs through the thyroid that works the vocal chords. It wrap around the trachea and lies along the windpipe (trachea)
and are joined together by a narrow band of thyroid tissue, known as the isthmus.
Even with the most meticulous surgery, small amounts of thyroid tissue are often left behind to help preserve the integrity of critical structures that lie beneath the lobes of the thyroid. After surgery thyroid levels can fluctuate. Thyroid antibodies can persist in the blood circulation for 2-3 months and can cause effects on residual thyroid tissue, and thyroid tissue cells in which thyroid tissue can grow over time. It is important to have thyroid function tests done every month after surgery for at least the first six months. When levels are stable then thyroid function tests can be done every six months.
Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!
GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 - IED - Intermittent Explosive Disorder (Graves' Range)
2007 - A-ITP (suspect)
Hello out there. I'm new to this forum so forgive me if I'm not posting in the correct place. I just got some blood test resusts back and my T3 free, T4 free levels were "impressive" according to my doctor. T4 was 7.19, T3 was 14.5 and TSH was below .1. I've been shaking quite a lot, I have a chronic cough, my heart is racing, I've lost 17 pounds in two weeks and I'm forgetful, unmotivated and exhausted! I have an appointment with an Endocrinologist in a week and a half. Do you think I'm waiting too long?
No, that's not too long to wait. Some people it takes months to get an Endo. appointment.
Just watch your symptoms and if they get too out of hand either call the doctor or go to ER.
Good Luck.
Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!
GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 - IED - Intermittent Explosive Disorder (Graves' Range)
2007 - A-ITP (suspect)
Just watch your symptoms and if they get too out of hand either call the doctor or go to ER.
Good Luck.
Just my personal opinion and/or experience. Always discuss your health issue with your doctor , always adhere to your doctors advise and, you always have the right to a second opinion. Nothing is a 100% or a 100%, 100% of the time. However, we are not all alike!
GL,
1990 - Hyper/Graves'
1997 - Dia/RAI
1997 - MVP - Mitral Valve Prolapse
1999 - TED - slight Thyroid Eye Disease
1999 - Visible Nodule (suspect Marine-Lenhart-Syndrom/hyperfunctioning nodule)
2000 - SAS - Short Attention Span (short, spaced paragraphs, sweet and to the point helps)
2002 - IED - Intermittent Explosive Disorder (Graves' Range)
2007 - A-ITP (suspect)
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