Who here has fibromyalgia? A couple of questions

[rayneweather]

When I came out of remission last fall & went hyper I had really bad aching muscles & joints.  I thought I had lupus but nope, it was my thyroid.  I have been diagnosed with underlying Graves so I do have an autoimmune component to my thyroid problem (in addition to the nodules & goiter).  After my TT I went hypo and again had the aching of the muscles & joints so apparently I get it both ways.  But now, even though I'm "euthyroid" with a tsh of 1.03 I still have aching muscles & joints.  It's a constant, low ache and some days it does get bad.  It's not severe or debilitating but it seems to be every day now.  In talking to a coworker who has both hypo & fibromyalgia she thinks seeing a rheumy to get checked out for fibromyalgia is a good idea.  My family has lots of autoimmune disorders so I know I'm at higher risk of getting other autoimmune disorders.  For those of you who have already been diagnosed with fibromyalgia - when were you first diagnosed with the disorder in relation to your thyroid diagnosis (before, same time or after)?  What are your symptoms?  What makes it better & worse?  Thanks for your input.

Rayne

[msfergy]

I dont have the pain like I use to so I think alot of that was my adrenal glands plus the thyroid, i was like clotting and so on for 6 months till all this got straightened out, my gyno said rather than put you under anastesia to be checked we could just do the hysto. to get it over with, i dunno if thats a good idea or not lol he also said there is another thing like endo. but you cant diagnose it until you have a hysto. done. About the xanax you said after you took the xanax you had more symptoms? Well there are days when i dont take them so i could see if it was them and i was pretty much the same, i only take a half of a 5 when needed. My sister was highly addicted to them and has lots of problems now so I know that is something i dont want to go through, she has been a mess for so long because of them.Docs just tell us oh you have anxiety here are some xanax then you get hooked then they want to take them away and say you need physco help now, thats what my sister has been going through.

[Jellyz]

i was addicted to xanax ...i took it for the past 5 months and it was tough coming off of it for me.  but i'm very very sensitive to meds.     my primary thinks i had xanax withdrawal syndrome.   the brain fog, unsteadiness, out of body feeling, seeing geometric shapes, having full body jerks at night ...all subsided after i weaned off of it.   unfortunately, the burning sensations didn't go away.    i thought a good number of those symptoms i was having were my thyroid ...but then i started tracking my symptoms and realized many started 6-8 hours after the last xanax i took.   and they got worse, the longer i went between doses - i was taking it prn for severe anxiety..

cysts don't usually have anything to do w/endo...but they can cause pain like endo does.   you can have an exploratory laparoscopy to find out if you have endo.    i've had 3 surgeries to laser the endo out.    my pain has gotten much better over the years.   do you have a lot of pain?

[msfergy]

I will have to try that MyoCalm, I been taking Flexeral and Xanax for mine and afraid I will become addicted to them. I still wonder about Endometriosis, I have 3 cysts on ovaries does that have anything to do with that? I have a gyno that was more than willing to do a hyster. but once i started the hydrocortisone my periods are not all that bad now. My sisters and Mother all had hyster. and I beleive it was due to endo.

[Jellyz]

I've been having bizarre muscle aches and pains since my TT in May ...and being 'euthyroid' as well....my doc says that fibromyalgia is that sort of catch -all phrase for when docs can't figure out what's wrong w/you ...pain wise.     they've ruled out lupus, MS, rheumatoid arthritis and more, just have to visit w/the neurologist .  my family has lots of autoimmune stuff too - i have endometriosis, my mom MS, my dad rheumatoid arthritis..

i have started taking an herbal muscle relaxer and it is doing wonders for me...with the twitching, pain, burning sensations.   it's called MyoCalm.    it contains magnesium, calcium and a few other things.   this leads me to believe  the Nyxie is absolutely right -on...i plan on getting tested for vitamin deficiencies as well.

[rayneweather]

Thanks - I will definitely check into that.  Haven't seen you around much lately - how are you?  I'm getting ready for my big move up to Bucks County on Monday.  I'll still be close :-)  And we really need to get together.

Rayne

[Nyxie63]

I was dx'd with CFS/ME, a close cousin of Fibro.  After testing, it was determined that my chronic fatigue and pain was a combination of iron and vit D deficiency.  Since being on supplements, a good part of the fatigue and almost all the pain is gone.  It might be something you'd want to look into before accepting the dx of fibro.

[msfergy]

Also hun stress makes it worse, i have to take muscle relaxers and warms baths with candles and just relax as much as possible.

[rayneweather]

Thanks for letting me know your experience.  That's my question, too - what's thyroid and what's someting else?  I hope you get it all settled for yourself.

Rayne

[msfergy]

Well my Doc told me in the beginning of this year when I started complaining about pain here and there that I had Fibro, I have had the thyroid problem for who knows how long but as you know it all came down on me hard this year, I have all hypo symptoms and assuming hashi with the high antibodies and will know more after they take that lobe out. What makes it better? Hmmm can't really answer that but I have taken aleave to help it and it works for awhile. My symptoms now are a lil different than in the beginning but I was told if you have pain on the certain pressure points of your body then you have fibro, there is also fibro fogs like thyroid fogs and fibro is caused by a underlyeing illness or stress they say. My opinion I beleive FIBROMYALGIA is just a word, and I beleive it is coming from the thyroid as it has pretty much the same symptoms if you look it up. The docs will say Oh you have fybromyalgia when they cannot figure out why you have pain.
Hope this helps you........... In the beginning when they told me thats what I had and they gave me a book about it, I took the book back and told them straight up I donot have fybro, but maybe I do but also on the other hand it can be the thyroid.