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Avatar universal

Help and advice I'm scared

Hi,

I'm new here been reading posts for two days. Originally came here via search engine to find information on the new meds I have been placed on and got drawn into your lives with your story's. I'll try to keep this short. One night I was getting ready for bed and felt like I was going to throw up, out of no where no warnings no symptoms nothing. I threw up the immediately fell to the floor I'n more pain than I could attempt to describe. Luckily my husband heard me because I couldn't have called out to him if I had too. Told him get me to hospital something is bad wrong I was very scared.

I lost 90% of my pancreas overnight it necrotized. I kept asking if I was going to die they wouldn't answer me for two weeks. They wanted to induce coma the pain was more than they could manage, i refused. Took me a week to convince them that I don't drink. Eventually they copped out and said maybe it was the lisinapril I was on for my BP.

Tests tests tests could not find any stones I'n gallbladder couldn't eat or drink got a 6 x 8 inch psyuedo cyst on what was left of my pancreas. After 5 months I'n hospital I told them to go take my gallbladder I was tired, tired enough to die. They said they would have to completely open me up I said whatever. They took gallbladder out it was sludgy they cut hole I'n cyst and stomach 32 staples later I wake up.

Five months almost 6 and I'm going home after all the morphine pumps I had no withdrawal. 4 more months at home still tube feeding total weight loss 70 lbs I'm only 5'2 tall.

Eventually learned how to eat again that was so hard to do. Ended up on norcos. Never took more than prescribed even tho my pain everyday was he'll it never got better.

Back and forth to hospital every 2-3 months with bad infections caused by my remaining pancreas that was infecting all digestive tract and liver. I wanted to die. If not for my two grand babies so I continue to fight.

Last checkup my doctor asked me when I was gonna stop being so stubborn. I had no life couldn't function, i sat thinking.... I'm 50...I'm I'n massive pain... My life has been shortened...so I finally gave I'n and told him send me to pain clinic.

I currently have 4% of my pancreas and still not diabetic it's working it's little heart out. They do a nerve block tell me come back I'n a week for the other side. I'm told my pain is akin to end stage cancer (like I didn't know that) I go back and sadly tell them it didn't work I had such high hopes after so much suffering.

They say it's not working and they are not going to do the other side. They send me home with ms contin 30 mg twice a day and dilauded 30 mg 4 times a day. I'm on my third day of no pain I'n over 18 months. It's like I'm experiencing things for the first time. A shower is to be enjoyed not just to shave pain off.

Then I read all this stuff.

Now I'm scared, I've never been addicted I'n my life always could just lay things down with no problem. I'm pain free do you have any idea what that means to me? But according to all of you I feel like I've taken my first steps down a path that I'll regret.

I'm scared and need advice
Plz help me
Best Answer
Avatar universal
And how is it your fault? Did you find a place to buy suffering? Some special catalog of afflection and look at the pictures and point out hey that looks fun. Ill order two? Lol. Trying to make you laugh. How in the world.do you think this is your fault? Your fighting for your life! Your family loves you worries about you. Pity parties are not allowed. Sorry. Being upset yes. Mad yes. Fustrated yes. But no pity paries. Your fighting for everyday of your life. If you get one more day than spend it wisely. Youve been thru xxxx and back. God wants you here for awhile to spend with your family. They love you anyway shape or form your in. Your a child of God. Im praying for you
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Avatar universal
No one is really replying anymore.
Am I suppose to make a new thread?
I feel kinda like ppl only respond once then move on.....
I'm still here and I still need help.
Have I done or said something to offend anyone or is this pretty much the norm? Draw ppl I'n make them feel like you care offer them hope and then disappear?
It's ok I'm used to it
Back I'n the older days you could rely on ppl hack a handshake and your word was all you needed. Not anymore. Ppl have become disposable objects. I think that is the saddest thing I'n the world and something no one will ever be able to say about me.
Once again it appears I have over stayed my welcome. I apologize, wish you well and hope that you never feel abandoned it's far worse than any physical pain I will ever endure.

Good bye
Helpful - 0
Avatar universal
Yes I'm very certain that's all I took. I've always used a pil box and fill it each day that way I make sure I never take more than I'm supposed to. It's always a nice feeling.as well when the end of the day arrives and I can easily see that I did not take full dosage that day. My docs know what I'm on but no one has ever told me to stop taking them.

I've been on Xanax about .... 8 years with only two upgrades. One I asked for after 3 years I told doc it's not working as good he upped me from .2 to a .5 I take it for anxiety. Then when I got sick he said to take 3 pills a day instead of two so as you can see my dose is still very low.  

But I'm seeing my doc on the 11th and I will mention your concern as well as my inability to sleep and what happened.

Please and Ty for all  advise I'm so grateful for all of you.

I've never been an abuser and I do not wish to become one.  

I just want to controle my pain safely and I'n an intelligent manner
Helpful - 0
Avatar universal
Jackie- 12 hours is very unusual but you are very unusual!  Do you take that med combo all the time? It's not good to take Xanax and Dilaudid together. It's a potent cocktail for healthy organs and here YOU are! That is one possibility of what may have happened...

Don't take those together anymore; at least until you can speak with your doctor.  It would just be safer.

How are you feeling now?  Do you feel rested?  Also, are you sure that's all you took or could you have forgotten something?  It's always a good idea to document every time you take a medicine. We all tend to forget if we took a last dose...it's a good precaution just in case that's what happened.
Helpful - 0
Avatar universal
I never ever ever sleep for more than an hour to 90 mins today my husband came bursting I'n the door scared me he was all over me asking you ok baby???? I had slept 12 hours. It's not due to the meds either cause all I took before laying down was one Xanax and one dilaudid. I'm scared this is not normal should I be scared? Was my body just that tired? Please advise I am very thankful for the sleep but I have the strangest feeling that I might have almost been hurt or something. I don't know how to digest this I just have a very de ja cue feeling. Should I be worried?
Helpful - 0
495284 tn?1333894042
COMMUNITY LEADER
The Pain Management forum is also very supportive and they are all really helpful.  Check them out.

Enjoy those grandbabies~~
Helpful - 0
Avatar universal
Here you go but don't be a stranger!

http://www.medhelp.org/forums/Pain-Management/show/53
Helpful - 0

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495284 tn?1333894042
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