I've hit the wall

[lulu747]

Day five and still the suffering is unimaginable.  My body hurts so badly that I have been spending most of my time in the bath.  I am crawling rather than walking and the sneezing and nausea just keeps getting worst.  Last night I slathered my legs and feet in tiger balm and wrapped them with a heating pad.  I slept two hours.  I am just curious because I have read so many posts from people on day 5 saying they are going out and exercising.  I can hardly stand up.  I am taking all the vitamins and supplements, drinking lots of fluids, and even managing to eat small amounts.  I never had leg pain like this the last time.  Any words of wisdom for me?  I am still mentally in this to win this but I am SUFFERING.

[lulu747]

Still no sleep but feeling stronger every day.  I actually made my goal today which was to blow dry my hair-I had a serious afro goin' on(:  My legs hurt again but I think that's something I'm just going to have to ride out.  Kind of freaking out that it's two weeks until Christmas and I have done zip-but then I think the best present I could give to the people I love is to be well.  Tapering down off the clonidine and the benzo's-they are not a road I wish to go down long term.  Hugs to all...Lulu

[lulu747]

i feel a million times better...If only I could sleep(:  And Holly I totally don't think you sound granola (but then I did grow up on a small island)  I have tried every natural supplement and eastern medicine under the sun.  I was only 28 when I was diagnosed with 4 auto immune illnesses and I refused to accept it.  I spent literally thousands of dollars on different remedies.  It's taken me five years and a crap load of meds that made me feel worst but I have finally realized it is simple.  Sleep.  Avoid stress.  Eat well.  Do yoga.  And most importantly-don't be so hard on myself.  I am a type A perfectionist and it does not serve me.  I spent years feeling like my illness was punishment-something I brought on myself.  Now I know that crap happens-it's how you deal with it that defines you.  Balance and a lot of self love are my mantras. Plus I have an amazing support system with my family but they don't really understand-just hate to see me suffer.  You all have helped me so much!   Big hugs to all-I am going to try for sleep....

[Dannigirl69]

So glad your feelin better :)

[fpvfem]

Hey mate hang in there I'm 14 days today n my legs have there moments mate thos morning now 2pm they hurting tthey do start to feel a lil better everday keep up the goos work huni love from oz mwah xoxoxox

[hollytabor]

You can do this!  I was lucky enough to avoid the leg pain - but I had everything else ... but every day gets you a little bit stronger.

I definitely think you're on the right track with yoga ... and I'd urge you to look into natural remedies.  I can't begin to tell you how much better I feel off the pills and natural supplements/vitamins.  I don't mean to sound all granola crunchy ;) ... and when I was in the thick of the pills, I don't think I would've thought it would work - but I feel better than I have in years.  Mentally & physically!

[lulu747]

Thanks again all!  Marie-I too have been on the opiates for serious chronic pain issues but I can't deal with the side effects and vicious merry go round of these meds.  I am choosing to have faith that I can manage my pain without drugs of ANY variety.  I have been taking my yoga teacher training and it has had an enormous impact on my life.  It is great for the CNS amongst other things and I credit my 4 classes a week with putting my Rheumatoid Arthritis into remission.  I think drugs are a quick fix to our suffering that in the end only increase our suffering-I pray that you find your way to living a full and happy life...Drug free(:  Hugs to all!

[GA_need_help]

Lulu,
I just want to add my support.  You are mentally strong.  You are doing this deal.  Awesome!  I am doing a taper from Opana ER.  I have already come off of clonazapam and soma.
   I know how bad my back pain is.  I am praying that my Lord and Savior will show me the way to not have to be on the medication, but to not live with the awful pain in my back I have known for so long!!!
   I am so glad you have seen your leg pain let up.  I can't imagine how hard that is.  I had something like "whole body restless syndrome."  It was pretty terrible, so I can imagine what you have been going through.
   You are making it to the other side!  I send my love and prayers.Marie

[ImDONENoMore]

See?  That's kinda how this all works - we get those panicky painful moments and thank gd they pass.  And you are doing all the right things for yourself - the sleep, the baths.  It has to do a lot with finding ways to treat ourselves better than w have in a long while.  This is good lulu, very good.

Now stay relaxed by doing nothing, or just going slow for a bit.  Your body will continue to adjust but it will also reward you for being nice to it.  :)

[lulu747]

Doing so much better.  My leg pain finally diminished a couple of hours ago and I actually managed to nap for about an hour-I wasn't fully asleep but it was better than nothing!  I added eucalyptus oil and lavender to my 4 baths a day and it really helps.  I am really hoping and praying for sleep tonight-and a better day tomorrow in which I can actually get my sorry butt outside!  Thanks to all for your kind support.  Looking forward to Day 6!

[Dannigirl69]

How ya makin out you okay?keep me posted :)take care ,

[lulu747]

yep-living in the bath.  I've had the leg pain every night but this is the first time I've had it in the a.m.  Dear God I just want to sleep.  Thanks to all for the support.(:

[Dannigirl69]

For some reason,ya know that report tag,it light up, I don't know why...I didn't push it ...hope someone tells soon cause I don't know what this means or if I'm doin something wrong

[Dannigirl69]

Um well when your coming off drugs your body goes through alot,I always felt it got easier after 3/4 day,I spent most of my time in the tub with raisen toes lol, but ya its hard just be strong, and listen to your body.If your not feeling right go to doc or hospital,withdrawl can be very dangerious . Okay so I hope I was of some help :)

[lulu747]

Thanks-my doc is away but I may go to a clinic if this does not abate.  It isn't really restless legs-more like unbearable cramping.  I tried stretching and almost passed out(:

[littlebit667]

Can you talk to your doctor.  I am on a restless leg med that is low in side effects and non addictive!  It is called carbidopa.  I do not take the amount that is needed to maintain it's original use..so side effects are nil.  Keep it up!!! I promise it will get better.