Hello, friend-- has anyone checked your Vit D level? The bone pain sounds like osteomalacia (adult form of rickets) from deficient Vit D, which leads to low calcium (only your serum calcium will LOOK normal or high). Ionized calcium should be checked, not serum calcium. Your endocrine system will be trying to salvage enough calcium for your vital organs to survive by leaching it from your bones (and teeth).
A range below 20 is seriously deficient, 20-30 is inadequate. Barely adequate is 30 and optimal is a minimum number of 50 up to 80. If it hasn't been tested, request it ASAP and make sure you get a copy of the test so you can see the number for yourself. Don't let someone tell you it is "normal". Go to YouTube and see "Dr. Michael Holick, Vitamin D and Prevention of Chronic Diseases". You will be stunned at all of the illnesses that result from Vit D deficiency. To correct a deficiency, you should be prescribed a prescription form of Vit D that is 50,000 iu taken 1xWEEK. Then take 2000 iu/DAY. Have your level tested at the end of the 8 too 10 weeks and if it hasn't come up, you may need to get your Vit D by injection. If your doctor isn't familiar with this info, find a new doc!
Just some of the illnesses connected with Vit D deficiency include arthritis, cancer, depression, impaired immunity, MS, obesity, osteoporosis, rickets (in children), pelvic prolapse (from the ensuing calcium deficiency). If you don't believe it about the pelvic prolapse and urinary incontinence, just check the April 2010 issue of this magazine: Obstetrics & Gynecology: April 2010, volumne 115, Issue 4, pp 795-803, "Vitamin D and Pelvic Floor Disorders in Women: Results from the National health and Nutrition Examination Survey". Badalian, Samuel S, MD, PhD; Rosenbaum, Paula F. PhD. Results: One or more pelvic floor disorders were reported by 23% of women. mean vitamin D levels were significantly lower for women reporting at least one pelvic floor disorder and for those with urinary incontinence, irrespective of age. . .Conclusion: Higher vitamin D levels are associated with a decreased risk of pelvic floor disorders in women. (This is because low calcium impairs muscle function including the detruser muscle that stops and starts urine flow.)
Do you know what turns on your immunity? Vitamin D
Thank You so very much for your reply! I was extremely vitamin D deficient a while back, and my doctor did get my levels back up to normal with the exact dosage you mentioned, and the new doctor said the levels are normal again, but there has been a new wave of attacks. Maybe they found and fixed the deficiency too late.
I got my bone scan and 9 vials ofd blood drawn, along with nerve testing that will reveal any muscle or nerve impairment. I won't have the results until the 13th of September, but stay tuned and I will keep you posted.
You are an angel for giving me this valuable info. I knew about some of it, but not the incontinence part. I do have the bladder of a girl, now.
The tech said he could not reveal anything to me regarding hot spots or cold spots on the bone scan, because he wasn't allowed to, but he looked at the images and came back in the room asking if I had suffered a traumatic fall or injury or surgery in the past year. I told him no falls, no injuries, but had gotten my gallbladder out last year in November, and this year had gotten TVTO.
He said they needed to rescan my ribs and back behind the ribs, as the dye was still present there. I know that's no good.
All I can do for now is wait. My doctor's nurse called me back and left a message because I was alseep from the pain. She said she wasn't allowed to give me the results, either. She said my rheumatologist would review them with me when I came in on the 13th. Again, thank you for caring enough to share.
I wanted to leave a record of my unusual symptoms because they don't really seem to meet the crteria for any disease I have read about, thus far, and I figure that's why it has been so difficult to diagnose. This will aid doctors in the future if they ever run across another patient like me.
One thing I found out is that I am definately vitamin D deficient again. You were correct. I still have to wait to find out the rest of my results, though.