ADULT ADEM OR MS?

[santana8]

HAS ANYONE HAD ADULT  ADEM? I HAVE BEEN DIAGNOSED WITH THIS FOR NOW, BUT NEUROLOGIST IS STILL CHECKING ME WITH REPEAT MRI's EVERY SIX MONTHS TO WATCH FOR EVIDENCE OF MS. HAS ANYONE GONE THROUGH ADULT ADEM OR HAS ANYONE BEEN STUCK BETWEEN THESE TWO DIAGNOSIS' S. AS  ADEM IS RARE IN ADULTS I WOULD BE THANKFUL TO TALK TO ANYONE WHO HAS BEEN THROUGH THIS ILLNESS AND CAN GIVE ME SOME INSIGHT.

[oana931]

My name is Oana and I am from Romania. I am disperate because my husband was diagnosis with ADEM in may 2011. We don't know sure if this is ADEM, or SM, from beggining was on tratament with solumedrol i.v. and now we ar at home, with medrol, and doing phisiotherapy and cognitive therapy. I am disperate, because is very very frustrating period in our life. i am excuse for my bad english, but this is forum where I find some information about this disease. How many time you think during this period, because in my country almoust nobodies knows about this. Thank you!

[Jetta123]

Hi My sister in law has ADEM since Feb 2010 and I would like to help her as she has 3 children of which ages are 13,2, and 5 months old please contact me on e-mail ***@****

[marius728]

It's now 11 months since I've been diagnosed with ADEM. I recovered pretty well. No medicine, just lots of vitamins. I've been working now for 7 months. Memory is'nt always as it should be, but okay. I have slight osclillopsia (google it) in one eye causing the drunkenness. No one knows this disease so I can only tell you about my situation. Don't lose hope!

[nutrinut_bob]

I've never been diagnosed with this, don't trust the medical community enough to visit them, but I can say I've been through it.  The cause, in my opinion is smaller than they can see, without an electron microscope.  It is various mycoplasmas.  I believe I first contracted mine from a typhoid immunization received in 1968 from the AF who came to my little Ohio town after a flood.  It was shortly thereafter that I started seeing floaters, developed tinnitus, and my joints began to deteriorate.  That was at age 11, by the time I was in 9th grade, my shoulders would fall out of joint.

Marius728, I went the route you did over 20 years ago.  Started megadosing on vitamins, minerals and amino acids.  I got bigger and stronger, but the unknown enemy within did too!  I noted a thickening of my skin at that time, thought it was from the improved nutrition, yes, and no.  It was a thin layer of the little vermin forming under my skin, as Johnathon Winters used to say, "All over my boooody".

About 8 months ago I began an antimycoplasma herbal regimen.  After 2 months of it, on Valentine's day, I felt like I was melting as all the little vermin in my upper body died and fell into my legs.  Also, I saw the last floater in my right eye change from a squiggly shape, pop, to fried egg shape, then pop, it was gone!

I still have tinnitus, though the volume is lower, and I still have floaters in my left eye.  But one does not eliminate something that has been dwelling in you for over 40 years quickly. I don't think the body could handle all the toxins released if they all died at once.

[zsfromar50]

My hushand and I were just told he has ADEM.He because sick why he was on the road.At  first he had a very bad backache.2days later I called him to see when he would get home .And he told me he didn't remamber where he was.And he couldn't fightout how to get help.I am 650 miles away looking for him In Iown someplace.Thank God for 911.Because a hour later I got him help.By that time he had numbness in his hands,feet and face he couldn't walk.By the time I got to him he had lost most of his memory he did know me .But couldn't remamber much more.He lost the use of his right side.And could not see.He was very confused.
He had 4 MRI 2 spinal Taps and CT stan Last the brain byosy in 12 days.
Day 16 he is in refab now.
His memory is lost he is confusion,He has no pain.He is standing with help.He can't get some word to come out .I am told that it could be years before he recover.But how much he recover is not for same.He is only 51 years old .I don't know the next step right not .Well he ever know me as his wife again?

[Jlee9092]

Hello, My son was Diagnoised with A.D.E.M back in 2007, which from my understanding is caused from school shots.  From my understanding A.D.E.M only happens to children from the ages of 2 yrs of age to 22 years of age, after that age it is considered to be M.S.  Me nor my husband had ever heard of A.D.E.M before this happened to our son.  God Bless