EXTREME dry mouth and eyes

[cudagirl]

I have had a serious bout of dry mouth and eyes for about 4 months now...so bad it is causing tooth decay. I was tested for Sjogrens but the test they ran( Sjogrens AB) came back negative.  My mouth gets so dry I can't even talk.  I am also having eye problems like light sensitivity, this weird white gooey deposit on my eye and I have had to use eye drops constantly.  Right below my jaw on both sides, I have swollen glands but they do not hurt....any suggestions?  I don't like my Rheumy doctor since we switched insurance...I don't want to ask them or even go back there.  This is becoming a problem though

[marie571]

hi i am new here .i was just told i have lupus  does any one knows if it can affect the heart?

[MargueriteF]

I couldn't get that link to come up.  I'll keep trying.
I am wondering if an elevated sed rate could also be caused by the mycoplasmic infections you mentioned? That is my recurring problem. I am sero negative for both the Sojgrens and RA and test positive for fibro.

But prior to all of this onset, I had chronic sinus and bladder infections.

Thanks for the info.

MargueriteF

[Zachie13]

I have had Sjogrens very bad dry eyes mild to moderate dry mouth but normal blood work for 30 years. 50%of the patients r this way. Right now I'm having painful cracks in the corners of my lips.

[missnanny]

The reason an infection is suspected, many times, might be because it isn't recognized as an anemia sign

LEUKEMOID REACTION
Classically, in Immune Mediated Hemolytic Anemia the stimulation of the bone marrow is so strong that even the white blood cells lines (which have very little to do with this disease but which also are born and incubate in the bone marrow along side the red blood cells) are stimulated. This leads to white blood cell counts that are spectacularly high.
      http://www.valdezlink.com/re/highwbc.htm

A cause of eyes burning and hurting may actually be a sign of exposure to BUTYL in many products, even home cleaning products, paint, etc.  Vapors in one's eyse (either direct exposure or 'second hand exposure')

Ask the lab tech to LOOK at the RED BLOOD CELLS

http://www.valdezlink.com/re/medhelp/hippain.htm#things

[watson01]

Hi Cudagirl!

I would strongly suggest that you push your doctor to do a lip biopsy.  Even though you were sero-negative for the Sjogrens AB and none of these antibodies were detected in your blood serum which happens in about 25 % of patients who really do have Sjogrens syndrome but they don't have measurable sjogren's Ab's in their blood.  A lip biopsy may show changes that are consistant with Sjogren's and confirm the diagnosis.  Once this Dx is estabilished usually the rheumatologist would treat with steriods like methylprednisone and then you could hopefully get some good relief of your symptoms.  Good luck to you.

Dawn
  

[PlateletGal]

I don't have lyme disease, but the treatment that I'm currently doing is basically the same treatment that lyme patients are on... it kills the pathogens that  apparently are responsible for my immune dysfunction and autoimmune problems :


"We found that about one half of patients with Gulf War Illness and two third of patients with CFS/ME and FMS were positive for mycoplasmal infections in their blood."

"Recent reports and publications indicate that in addition to mycoplasmal infections, CFS/ME and FMS patients have other chronic infections caused by other intracellular bacteria and viruses."

"Infections have been found in a variety of Autoimmune Diseases, particularly in Rheumatic Diseases, such as Rheumatoid Arthritis, Scleroderma, and other rheumatic disorders. We and others have gathered substantial evidence that chronic bacterial and viral infections are commonly associated with Rheumatic Diseases, and many of these patients respond to antibiotic therapy."

~Dr. Garth Nicholson (The Institute for Molecular Medicine)

[Coolio Hernendez]

Sounds alot like Lymes disease...