EXTREME dry mouth and eyes

[cudagirl]

I have had a serious bout of dry mouth and eyes for about 4 months now...so bad it is causing tooth decay. I was tested for Sjogrens but the test they ran( Sjogrens AB) came back negative.  My mouth gets so dry I can't even talk.  I am also having eye problems like light sensitivity, this weird white gooey deposit on my eye and I have had to use eye drops constantly.  Right below my jaw on both sides, I have swollen glands but they do not hurt....any suggestions?  I don't like my Rheumy doctor since we switched insurance...I don't want to ask them or even go back there.  This is becoming a problem though

[Joni686]

Thanks for the heads up.  If you think about it please let me know when he will be there.
Joni

[PlateletGal]

We are going to have a guest physician join us early next month in the fibro / CFS forum. He has done research not only on fibro & CFS... but autoimmune conditions as well. You are welcome to join us. Keep checking the community for the date.

[cudagirl]

Hey it has been a long time,,,,,,,how are you?  I just made a appt with my dr to see what is causing this.  I can't talk for more than 5 minutes and my mouth becomes almost hard I guess you would say.  My salivary glands have been swollen for over a year, they said it is because I have to much immuno something.....Just the last few months they have really swollen up, but no pain.  My husband thought at first that I had mumps.  I hope all is well with you, and the hurricane!
Pam

[Joni686]

Oh and I was tested two months ago for Sjogrens and it came back neg. too.
What do you think that means?  Maybe a pos. neg. at first??  I dunno...
Joni

[Joni686]

Oh my gosh Pam,  I had my salivary gland swell up and the whole right side of my face was swollen along with my right eye.  I have had dry mouth so bad that I cannot talk at times without stopping and taking a drink of water.  My tongue will stick to the roof of my mouth at times.  I know, GROSS!  Anyway, when my salavary gland swelled up the doc put me on 10 days of anti-biotics and said it should be gone in three days.  it took two rounds of meds and three weeks to go away.  Since then I have white gunk that comes out of my left eye.  The opposide side that was swollen.  I have to use eye drops all the time because my contacts dry out.  I also am getting cavities worse than most people.  I just couldn't believe it when I read your post and you were having the same thing I am.  I don't believe it is exposure to drugs or chemicals, at least not for me.  I am also a Lupus patient as are you Pam.  I don't have an answer but I can say you're not alone sister-friend.
Joni

[missnanny]

at the time these issues started up, was something new going on?

I would look for exposure to a component in cleaning products, paint:

such as BUTYL or 2-butoxyethanol

Be sure you are NOT being exposed.