Hi Trudie. Thank you so much for the reply. It's reassuring to know that I'm not alone. When I was first diagnosed with SLE, I was immediately prescribed plaquenil and a low dose prednisone. I was a user of both medications for 10 yrs. A year or two back, the Rheumo which I had seen, took me off of the plaquenil and not long after that my primary took me off the prednisone due to testing negative on my ANA count. I therefore, had managed my pain, inflammation and flare ups with naproxen, which does save my life. Several years back, I learned of Lyrica. Wonder drug for about 2 yrs then, I started showing some side effects or what I believed to be side effects. I haven't been off of it for too long, and have seemed to being doing ok, until recently when these other symptoms arose. It's baffling. I had blood work today to check my glucose levels and to rule out a possible kidney infection/uti. I pray the results are nothing more than my preexisiting conditions. If these new symptoms are related to SLE and fibro, I may consider giving Lyrica another try. In the meantime, have you heard of Savella? Apparently, this is another form of Lyrica. So how are you feeling? You appear to have a control on your illnesses, which I'm happy to hear. You're an inspiration, thank you :) oh and thank you for the Remeron tip. I'll be sure to talk to my Dr. about it. The crap I take now, just seems to make the depression worse.
Hi there. We aren't doctors here, just other sufferers. I have SLE and fibromyalgia. What drugs are you taking? I am on plaquenil which is managing my SLE, on Remeron for depression (really, really helped) and Lyrica for fibro. I had the itchies for many years and some weird tingling & burning sensations as well. When I started the Lyrica it solved it.