I have been in pain for years. Bones hurt. The only way I know how to describe it is that it feels like they are being eaten from within. It sometimes feels like bone on bone pain, like my long bones are shattered. It's safe to say that all of my bones are affected, including my orbits. Muscle aches. It feels like laying my arm on surfaces disturbs the meat inside.
Migraines come with attacks. Like, wedges between fingers, like toes could break, tops of feet, and bottoms kill me, tears in the in the bottoms of feet, felt like my knee almost bent backwards and nearly broke just from walking. Knees hurt so badly. I can do nothing but cry. Nerves pinch in back and hips. Left leg shorter. Right shoulder and hip higher as a result. Left foot bigger. Born pigeon toed and knock kneed. No heat or swelling in bones, except pitting edema in shins, and a bit of swelling from fluid in knees, and I can sometimes feel where under breasts and around ribs, it's filling with fluid and tightening. That's a weird sensation. Parasthesia near upper left spine and into side of neck. Significant scoliosis.
TVTO sugery for urinary incontinence. Best thing I ever did! Doc said fibromyalgia, but there are no tender spots, just aching like severe flu. I humiliate my doc because he can't figure out what's going on. I dismissed him after 14 years of no diagnosis other than depression. Depression?!? Pffft! I go in there crying because of the pain, not because I am depressed! GERD since the mid 90s. Hypothyroidism. I take meds for these, but not pain. I have lost 43 lbs to try and halt the bone pain, but it is getting worse. Angle closure glaucoma. Severely vitamin D deficient. Not anymore.
Here is my question: If Rheumatologist gave x-rays and drew blood, and is now sending me for bonescans and nerve testing, it is probably because he has seen irregularities in the x-rays, isn't it? I asked what he would look for in bonescan. He said Paget's. Does this sound like a possibility?
A range below 20 is seriously deficient, 20-30 is inadequate. Barely adequate is 30 and optimal is a minimum number of 50 up to 80. If it hasn't been tested, request it ASAP and make sure you get a copy of the test so you can see the number for yourself. Don't let someone tell you it is "normal". Go to YouTube and see "Dr. Michael Holick, Vitamin D and Prevention of Chronic Diseases". You will be stunned at all of the illnesses that result from Vit D deficiency. To correct a deficiency, you should be prescribed a prescription form of Vit D that is 50,000 iu taken 1xWEEK. Then take 2000 iu/DAY. Have your level tested at the end of the 8 too 10 weeks and if it hasn't come up, you may need to get your Vit D by injection. If your doctor isn't familiar with this info, find a new doc!
Just some of the illnesses connected with Vit D deficiency include arthritis, cancer, depression, impaired immunity, MS, obesity, osteoporosis, rickets (in children), pelvic prolapse (from the ensuing calcium deficiency). If you don't believe it about the pelvic prolapse and urinary incontinence, just check the April 2010 issue of this magazine: Obstetrics & Gynecology: April 2010, volumne 115, Issue 4, pp 795-803, "Vitamin D and Pelvic Floor Disorders in Women: Results from the National health and Nutrition Examination Survey". Badalian, Samuel S, MD, PhD; Rosenbaum, Paula F. PhD. Results: One or more pelvic floor disorders were reported by 23% of women. mean vitamin D levels were significantly lower for women reporting at least one pelvic floor disorder and for those with urinary incontinence, irrespective of age. . .Conclusion: Higher vitamin D levels are associated with a decreased risk of pelvic floor disorders in women. (This is because low calcium impairs muscle function including the detruser muscle that stops and starts urine flow.)
Do you know what turns on your immunity? Vitamin D
Good luck!