Sjogren's: tingling, muscle twitching, does anyone get it?

[Rite760]

Hi, I was diagnosed with Sjogren's last month after 2 years of horror not knowing what was wrong. I have all the usual symptoms of dry painful eyes and mouth, painful salivary glands and drying up inside my throat, chest and stomach, which gives me a permanent dry cough and nausea. I just want to ask does anyone out there get a sort of trembling in your muscles, and tingling and twitching, even electric shock feelings under the skin, as if they're pulling themselves uptight but can't stop it. Also as if you skin is on fire and burning and itching? It comes on so strong sometimes I feel as if I could burst and it makes me so anxious. The docs have said before I was diagnosed with Sjogren's that this was stress, but I just don't think so, I am stressed because it took them a long time to diagnose me, but these things are a very physical sensations. I feel they are part of Sjogren's. I would be grateful for any help here. Thank you very much.

[notwell921]

I have a lot of autoimmune problems and sjogrens  is one of them I am trying different things and one of them is juiceing no medication and all supplements I believe lack of sleep is one of the largest  contributeing factors and since doctors cant figure it out one way or another I will by the way does anybody know if you can collect social security with ibs,hoshimotos,and secoundary sjogren Im 51 and it isn't easy because of these autoimmune diseases

[cargillwitch]

I have sjogrens and at first had crazy muscle twitching. Very distracting! When some bloodwork came back that I had a magnesium deficiency I did some research as to symptoms and low and behold muscle twitching, constipation ,insomnia and anxiety came up as side effects of low magnesium! I ticked off each one. I now take a minimum of 400 mg each day of magnesium( citrate). If I notice any of these symptoms returning in a large way I increase the dosage for a few days. Anyone with AI disorders seem to have difficulties with absorption.Even with a good diet we seldom retain all the nutrients we take in. I see this is a very old post. Hope by now you have found some relief!

[SassyGG]

I've been diagnosed with several autoimmune diseases including Sjogrens Syndrome and Fibromyalgia.  The random muscle twitches all over my body have come and gone for years.  Unfortunately, they have recently increased in both frequency and intensity.  A friend of mine with MS recommended I try magnesium oil sprayed topically on the skin.  I'm finding it has helped some.  It is a recent discovery, so I'm still trying to determine if it is really helping, if it is psychosomatic, or if the timing is a coincidence.  Have any of you tried a magnesium spray, and did it work for you?

[TrudieC]

The tingling and burning could be from fibromyalgia which often goes in hand with Sjoegren's.  Lyrica has helped me with that.

[Deborah2008]

I am 43 years old always remarkably healthy until 3 years ago when I was involved in a motor vechile accident. At first I was treated for disc injuries. After months Igota bad infection which messed with my blood counts so bad I was hospilitized. I was never the same, have had too many freeky things to mention here. Bottom line was diagonsed with Sjogrens. I have severe like arthritis conditions daily, burning, twitching and dry mouth. Have been to several Rhuemotogolist that say my problems are not from Sjogrens so I should go back to my pain clinic. I get 3-4 monthly injections.combo  anti inflamitory and pain drugs. It helps get me back on track and off heavy narcotics for a short term perhaps around 2 or 3 weeks all symptoms return. Than back at clinic. How can I tell for sure what is causing the pain? I test for other autoimmune and sometimes its postive and sometimes its negative. Any other type of dr I should consult. I usually just ignore it out of fustration and stay on my regiment until freaky stuff happens. Some answers I received are sorry sweetie we don't have anti-twitch meds. any help would be greatly appreciated I have been suffering for 3 years nows.

[Lori707]

I don't have sjögren's but do have other autoimmune problems and Lymes disease. I have the same neurological symtoms though. My doctor wanted me to take 5mg daily of Prednisone and I refused. I already have osteoporosis and don't want to make it worse.

About 2yrs ago I did a lot of surfing through different sites on the web. I got myself onto an anti-inflammatory diet,stopped eating red meat and dairy. I take lots of vitamins including 2,000 mg of fish oil in a pill form. It has no PCB's!! I take 1,000mg in the AM and 1,000mg in the PM. My inflammation went down so much and I don't have much pain from my arthritis. I joined a gym and exercise. I find that if I exercise I fall asleep better. I do take Gabapentin(Neurontin) for my whole body parathesia. As for the muscle twitches,pulls and spasms, I think it's the Fibromyalgia. Try to take up meditation and stay stress free. That's easier said than done but try it anyway.
By the way..I'm 59yrs old and am trying to take each day as it comes. I admit I'm scared but when I feel this way and get too anxious, I make myself think of something else. I have to stay calm and relieve my stress.

Best of luck to all of you!