I am a member of the above group and yes it is okay, there is also a group on fb called The fight against POTS which is also okay. There are also a yellow wiggles page on there!!!
I like reading these pages and they are supportive for their members but, personally, I feel more at 'home' on here!!! xx
Wishing you all a very Merry Christmas and a great New Year x
She also has a group on there, The Faces of Dysautonomia, for people to share personal stories, etc., if anyone is interested in checking that out you can find it by searching on FB. (I think if I post a direct URL to group there it'll automatically get blocked so rather than try and have it ****ed out, I'll just leave y'all the name and I'm sure those who use FB know how to find groups by name.)
I've only heard about it so far too, but would love to hear reviews here from those who are first to get their hands on it whenever people do get done reading it.