I dont know what to post this under

[malloryknox]

Blood pressure drops down to 82/46 mmHg when I am laying down and resting. But I pass out not when my blood pressure is low but when my blood pressure gets so low and i stand up my blood pressure shoots 20 mmHg up thats when I get a pulsateing feeling in my head, my vision hearing and ability to move starts to go. I feel sick tired numb almost... dead. Out of it for a long time afterwords. This happens everyday. My blood pressure stays at an low normal rate when I stay moving. I cant even sit and relax. I notice when I am laying in the sun it relaxes me even more.. never can stand back up then. These occurences are happening more and more freakently and more intensly. I thought I was having these problems because I feel and hit my head a year ago three times. They suspect that I may have a possible tramatic Brain Inqury but my circulation problems. "lose of feeling in my upper right leg" and if i get into a luke warm bath one leg feels warm water the other one cold.

-twitching
-head aches
-dizzy
-blacking out
-room spins more like plusates
-i see flickering lights some times
-weak body
-hypotension blood pressure
-head pulsates
-ringing and buzzing in ears
-confusion
-its hard to think or even read
- i feel otistic now in the sence i understand more than i can verbalize
its hard for me to compunicate verbally or writen. I write the same couple words repeditively. Have to re read then re read everything again to get a couple sentances down. Dyslexia maybe? it never as this hard before.

I took a EEG and nothing showed up. It didnt show i was having any seizures.
I am 19 turning 20 next month

Medical History:
i was born with cerebal pulsy or so i am told... I never had any problems with it at least non that i remember i was a baby when i was having troubles. Adnoids tuncsels removed, tudes put into my ears. I had a benine cist removed from my throat.

Family Histoy:
Grandmother on moms side has grand mal siezures. My aunti has a low thyroid count. My mom had low blood pressure (or so she says) she has a tendancy to lie and/or remember things wronge.

Past medications:
200 ml of zoloft off and on since i was 15 I stopped taking it 4 months after my head inqury because i felt like it might be worsening my health. I feel better off of it maybe not because of the drug its self but because of me just learning how to deal with these issues over time???

Immune defficency?? I do get bacterial vaginosis several times a year.
Brain tumor?
Blood clot?

[halbashes]

If you believe that you may have POTS, (or some other form of Dysautonomia), I would recommend making an appointment with either a Cardiologist or Neurologist at an academic teaching hospital for diagnosis.  You may also want to see a Dysautonomia Specialist.

Diagnosing Dysautonomia:
http://www.medhelp.org/health_pages/Neurological-Disorders/Diagnosing-Dysautonomia/show/827?cid=196

Dysautonomia Specialists:
http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Specialists/show/717?cid=196

Further Reading:
http://www.medhelp.org/health_pages/Neurological-Disorders/Further-Reading-on-Dysautonomia/show/696?cid=196

[somemonkey]

Did you get a tilt table test? Blood pressure standing and laying with a cardiologist.

[evo123]

I am glad you have maybe found some answers.  It is important for you to push your doctors now to test you for this syndrome.  Getting a confirmed diagnosis is not always easy.  

read up as much as you can and maybe take print outs, texts from medical leaders in the field, such as Dr Blair Grubb, and show them to your doctor.

There are many people on the dysautonomia forum or will offer you help, guidance and support.

Please keep me updated and god luck x

[malloryknox]

ya i have all the symptoms. there is no dout in my mind what i have now. I have spent weeks and weeks typing in my symptoms and reading about everything from brain injuries to thyroid to panic attacks.. everything. nothing fit quite rite... POTS is word for word for baton what I have been experiencing.

[evo123]

This link will give you a full explanation of POTS, it's causes and it's symptoms.

http://www.dinet.org/pots_an_overview.htm

Leave your original post here but copy it onto the dysautonomia community forum, there are many people there who will give you advice.  

If any of the symptoms sound familiar for you ask your cardiologist for a Tilt table test this would confirm or rule out a POTS diagnosis.

If your cardiologist thinks it may be related to thyroid/adrenals ask him to refer you to an endocrinologist.  

I have a variety of symptoms to and have only got a 'suspected' diagnosis at the moment.
These boards are a great place to be for advice and comfort whilst searching for answers.

[malloryknox]

what is Postural Orthostatic Tachycardia Syndrome?

[malloryknox]

how do i delete my posting here?

[malloryknox]

I just got a referal today to see a cardiologist... something about my glans/neck somthing like that regulating my blood pressure maybe all messed up. I was told that there isnt anything they can do for me really. Medications that help with low blood pressure (hypotension) are not recommented for me... causes sever water retention .. my anckles would swell three times there size? I dont want that, but I dont wnat to be passing out blacking out and everything else every single day for who knows how much longer. Its already been a year. Drink water... eat salty foods? thats it? I cant even get out of bed... i leave the house for a day i am so worn out i cant do anything for days afterwords. I used to be a nice person.. a great person now i am just an irritable ****.

[evo123]

Please post your question in the Dysautonomia (autonomic dysfunction) community forum.  

This could be as Rumpled has said POTS - Postural Orthostatic Tachycardia Syndrome, or this could be caused by other things to.  Have you had any other tests done, i.e. hormone panel.

[rumpled]

Have you seen a cardiologist - perhaps POTS?