Is your blood pressure high or low now?
It is normal now. But if I stop the florinef it gets low. Sometimes it gets to high thats why I take the Toporol.
You are certainly dealing with a lot of symptoms, I'm very sorry to hear about this. Have you had your electrolyte levels checked? I know that electrolyte abnormalities can cause many issues.
Since you are taking so many different medications, you may want to research
some of the interactions/side effects. It's certainly possible that some of these drugs are doing more harm than good. Be sure to check with your doctor before making any treatment changes though.
I would definitely recommend visiting another specialist. Hopefully the next doctor you visit will be more helpful in treating your condition. If you continue to have trouble with conventional specialists, I would suggest seeking a specialist at a teaching hospital. Have you tried Shands?
I know without alot of these drugs I wouldn't be doing as good as I am. Which isn't that great.I'm sure some of these medications are interacting with each other. I know they are keeping me going. So which ones to stop is the question in question. I've had 1 neurologist in town and 1 at the mayo clinic. I went to shands years ago for 3 heart caths. for EPS stuidies with ablations. You would think the mayo clinic would have wanted to figure this thing out. I don't think he even knew what was going on. He kinda ran some test and with everything turning up normal. He kinda just named it and sent me on my way. I am willing to travel where ever to figure this thing out. I'm not giving up and I hope that one day I will have a answer. Thanks for your reply any help is some help.
I'm sorry if Shands hasn't been of much help to you. You may want to try searching for a specialist online. If you email your symptoms to a couple of specialists, you may be able to find one who is interested in taking your case. It can be very difficult to find a doctor who is willing to listen, and research your condition.
I'm sorry I can't be of more help, and I wish for you the best.
Thanks for the reply back. I will keep searching until I hope one day to find the answer. You are also right aobut finding a doctor that will listen. I have good dr's but none that want to find out why all this has happened. I thank you so much for all the info you have given me. Thanks again