Thanks for the reply back. I will keep searching until I hope one day to find the answer. You are also right aobut finding a doctor that will listen. I have good dr's but none that want to find out why all this has happened. I thank you so much for all the info you have given me. Thanks again
I'm sorry if Shands hasn't been of much help to you. You may want to try searching for a specialist online. If you email your symptoms to a couple of specialists, you may be able to find one who is interested in taking your case. It can be very difficult to find a doctor who is willing to listen, and research your condition.
I'm sorry I can't be of more help, and I wish for you the best.
I know without alot of these drugs I wouldn't be doing as good as I am. Which isn't that great.I'm sure some of these medications are interacting with each other. I know they are keeping me going. So which ones to stop is the question in question. I've had 1 neurologist in town and 1 at the mayo clinic. I went to shands years ago for 3 heart caths. for EPS stuidies with ablations. You would think the mayo clinic would have wanted to figure this thing out. I don't think he even knew what was going on. He kinda ran some test and with everything turning up normal. He kinda just named it and sent me on my way. I am willing to travel where ever to figure this thing out. I'm not giving up and I hope that one day I will have a answer. Thanks for your reply any help is some help.
You are certainly dealing with a lot of symptoms, I'm very sorry to hear about this. Have you had your electrolyte levels checked? I know that electrolyte abnormalities can cause many issues.
Since you are taking so many different medications, you may want to research
some of the interactions/side effects. It's certainly possible that some of these drugs are doing more harm than good. Be sure to check with your doctor before making any treatment changes though.
I would definitely recommend visiting another specialist. Hopefully the next doctor you visit will be more helpful in treating your condition. If you continue to have trouble with conventional specialists, I would suggest seeking a specialist at a teaching hospital. Have you tried Shands?
It is normal now. But if I stop the florinef it gets low. Sometimes it gets to high thats why I take the Toporol.
Is your blood pressure high or low now?