NEW TO FORUM

[futureunknown]

SO GLAD THAT I HAVE FOUND A FORUM WITH OTHERS WHO HAVE SIMILAR PROBLEMS.  I HAVE PAF, ALSO BI-LATERAL LEG NEUROPATHY, AND SENSORY NERVE DISORDER.

[futureunknown]

GOD BLESS YOU ALSO, IT MUST BE DIFFICULT DEALING WITH THESE ISSUES WITH CHILDREN, AT LEAST MINE ARE AWAY FROM HOME, PLEASE FEEL FREE TO CONTACT ME ANYTIME, I DO KNOW THAT HAVING THE RIGHT DOCTOR HELPS TREMENDOUSLY, AND BEING ON THE RIGHT MEDICATION, I FEEL BETTER NOW THAN I HAVE IN OVER A YEAR BECAUSE OF THE ONES I AM ON NOW.

[Kellysavedbygrace]

I am so sorry to hear about your situation.  That must be so frustrating.  Glad you found your neurologist.  I have yet to meet with a doc that specializes in autonomic disorders and hope to next week.
Thank you for clarifying.  I have had severe sensory issues but not loss of feeling - extreme hypersensitivity to touch, light and sound.  I have feeling but when my symptoms are bad everything (including being with my kids, doing anything including touching paper) hurts.

God bless you.

[futureunknown]

I HAVE NO FEELING ON THE LEFT SIDE OF MY FACE WHICH INCLUDES MY MOUTH, TONGUE AND THROAT, ALSO CAN NOT MOVE TOES ON MY RIGHT FOOT, AND I WAS DIAGNOSED BY A NEUROLOGIST WHO SPECIALIZED IN AUTONOMIC DISORDERS. TOOK YEARS TO FIND HIM:(((

[Kellysavedbygrace]

What are your symptoms of sensory nerve disorder?  And how were you diagnosed with PAF?  

[futureunknown]

THANK YOU FOR YOUR OFFER:))

[Heiferly]

Welcome to our community!  We have others here with Pure Autonomic Failure.  If you have trouble finding posts specific to PAF in our forum, let me know and I'll pull up some of those threads for you!  Of course, feel free to ask any questions you have as well.  

Again, welcome!
Heiferly.