Heiferly,
You said that you have a list of what the Florida CC lacks compared to the Ohio CC? As you know I recently went to the Ohio CC and the dr. there said she's worked with a dr. Ashner (I think that's his name) that is now at the CC in Florida and thought he would be a good, more local person for me to follow up with. Have you heard anything about this dr.? And how do you feel about the Florida CC for a follow up/maintenance facility? I need to get away from my current cardio!!
I do have the list, though it may take me a couple of days to dig it up ... my brain is really foggy today for some reason and I'm trying to figure out where I stored it after I contacted them.
I've never heard of Dr. Ashner, strangely enough. That could be a good thing, honestly. If there's a dysautonomia-knowledgeable doctor working down there that you find you like, I think CC Florida could likely be a good choice for follow-up and maintenance. The more limited autonomic tests that they do have are probably plenty for what would be needed for follow-up purposes, and so long as you have a knowledgeable and considerate doc "at the helm," I can't foresee any problem.
I'll let you know when I find that list. If you don't hear back from me about it by about Monday or Tuesday of this coming week, send me a message and remind me. My dog is having surgery on Friday and I don't know if I'll get distracted by that and forget my other obligations.
Best,
-Heiferly.
I hope your dog is okay! I'm a huge dog lover and I would be completely consumed by it if my dog were sick :( Don't worry about the list, I'm not going there in the next few weeks or anything I don't think. So just if/whenever you think of it, but honestly don't worry, just take care of your doggy.
Hi,
I wondered if you had any success with Cleveland clinic or UM? I was just recently diagnosed with dysautonomia