Need Dr that treats POTS in South Florida

[pepito6]

Does anyone know of a good Dr.that treats dysautonomia (POTS) in South Florida??
I have been to the Cleveland clinic neurology dept with no results.  Maybe I should check their cardiology dept.  PLease let me know if you know of any.
Thanks,

[kelly1258]

Hi my name is kelly I put toether a Dysautonomia Association  in South Florida the purpose of getting doctors together for this illness.I have been consulted with and asked to speak to the local Dr.s and Hospitals.  I presently getting website going.  I already have the MD who is specializing in it and is a gatekeeper to get you going.  DO you need adult or child?  Kelly you can contact me directly at ***@****

[eldyrarias]

hi Kelly . My daughter was just diagnosed with POTS and I am also looking for a dr as well my email is : ***@****. your email did not come through. I am so in need of someone to help with this.thank you.

[Jade1930]

My son sees Dr. Young who is the head Cardiologist Electrophysiologist at UM childrens center and he (Dr. Young) has POTS as well.  I don't know if he sees adults.

[pepito6]

Hi Cathy, DR Adams is a neurologyst that came from New York and is supposed to be very good, I have not seen him yet,  I will let you know how it goes.
Maritza

[cathyst]

Hi Maritza-
I can't wait to hear how you make out with the dr. at UM.  My neuro at UM, Dr. Janice Maldonado, told me that there wasn't anyone that could help me there.  Is this dr. a cardiologist? I can tell you that Dr. Sharma, from UM is a huge waste of time and co-pay.  He was horrible and misdiagnosed me, after doing the EMG/nerve conduction test.

I am really upset that I left Vanderbilt w/o the adequate time to think of questions to ask.  Now I have a million.  I have noticed when I e-mail drs. with questions, they only respond to one in their reply - so frustrating.

Would you consider Dr. Adams to be very knowledgable about POTS?  Thank you for the tip on him!
Cathy

[pepito6]

Thank you for replying . I also went to see Dr.Salanga, at the Cliveland Clinic and I agree , it was a waste of my time. I am currently seeing a cardiologyst that seems to know about this, his name is Dr. Chizner in Broward General in Ft Lauderdale, he has been treating me with Toprol and salt tablets and gatoraide  and I am feeling a little better .
There is another Dr, at UM , that I will be going to go to in a couple of weeks, his name is Dr.David Adams, he was recommended to me by another neuro at UM. I will let you know how it goes with him and if he is worth going to.
Thanks,
Maritza

[cathyst]

I have heard of him, I think he is up in Pensicola.  thanks for the link, I'll check and see if there is anything I didn't already know about him.  He is always on my short list, after I get over swearing off of any more doctor visits.

Thanks-
Cathy