New to this dysfunction

[flutterby60]

What should I expect next?  I have Neurocardioginic Syncope & Auctonomic Dysfunction.  I'm truthfully scared!

Janie

[Mom2four85]

Sorry to hear you're going through this, while I don't understand all of what's wrong with me yet, I do understand NCS.

I've dealt with fainting since I was 9 and drs told me it was nothing unless I was fainting daily :(  I found out last August it was a bit more than just fainting - NCS & OI along with heart problems.  So mine's a double whammy with both cardiovascular & vasodepressor issues.

I don't think alot of us with NCS post here; POTS tends to be the more common topic. There's alot of great info under the topic section as well as DINET.

Usually, NCS associated with vasovagal is referred to as neurally mediated hypotension/NMS; vasovagal syncope and a few other things.  This is where your blood vessels expand, which leads to pooling of blood in the lower parts of the body, and less blood reaches the brain and this causes fainting. "The usual stimulus for this action resides in the nerves of the heart-hence the term neurocardiogenic".

Then people like myself, Tachycardia or VT causes the other side of my wackiness :P  which can be very serious, so if you don't know your cause, you may want to consult a cardiologist and see what they say.

Both are treated with medications such as Midodrine, water, salt, leg compression hose, physical therapy and learning your triggers. Each of us have different triggers and different responses to those triggers and even to treatments, so start keeping a journal and watch your symptoms.

Hope you get some more answers & info, pm me if you have any questions :)

[SouthernMaggie]

There are different types of Autonomic Dysfunction (sometimes referred to as Dysautonomia). All four of my kids as well as my hubby has it. It affects each individual differently but I would encourage you to learn all you can about it. Neurocardiogenic Syncope usually occurs in response to stimuli-such as pain, fear etc. Your heart rate elevates and your system kicks in and says 'slow down'. The system slows it down too much and it can cause you to pass out. Sometimes there's an overlap and people can have both NS and POTS like two of my kids do.

Many people live perfectly normal lives with it. You might have to make some adjustments. Just means the autonomic system is out of whack and can make you feel wiggy when you're symptomatic. Symptoms can range from mild to moderate-it depends on the individual.

I hope this helps : - )

[suz1857]

I kept waiting to see if anyone would answer our questions about what to expect. Since no one did, I figured that I could at least reach out to you. I realize that it's different for everyone and that may be why no responses.  I'm afraid that I don't know anything about your first diagnosis but I have autonomic dysfunction in the form of POTS. I am lucky that I am only sidelined sporadically. Please don't be scared. I think it's more the not knowing that makes diagnoses so scary. Once you start gathering info and begin to understand your conditions, you'll feel more in control. A good forum for autonomic dysfunction is the DINET site. If you have any questions that I might be able to help you with, just write. Take care- Suz