I don't go to Mayo or Dr Goodman but know people who are. Yes they have a good autonomic dysfunction dept there. I think to start a referral from an MD is needed or at least faster. You can go on their website or call them though to see what they recommend on appts.
My neurologist is satisfied with the tilt table test results- autonomic dysfunction. And is treating me with Flurinef and Midodrine with no further plan. I now can get off the couch and somewhat function. However, I have no med hx or risk factors, and have been a competitive endurance athlete for 20yrs. I feel it is relevant to search for the mechanism or cause of my autonomic dysfunction. I am trying to find the right place and doc to help me do this. Besides Mayo, AZ does anyone have suggestions for the NW?
There really aren't very many specialists in the area of dysautonomia, I'm afraid.
I was told P.O.T.S. could be hereditary and later learned I have a second cousin who has been diagnosed with the same thing. I've not had any official testing to determine the underlying cause of my autonomic dysfunction. I was diagnosed with P.O.T.S. back in 2004.
Since you want to pursue learning the underlying cause, if you can find a doctor willing to help you with a referral to Mayo, that may be the way to go.