Well, Lets see how the week is looking for all of us....

[tonyad]

   Well, Well, Another Week has arrived.

     For me, I hope that my week is looking to be better than it has the last week...Lol
I have to revisit the  EP,, PCP, and the Neuro this week to check on a Game Plan for some kind of relief.

   Other than that I am trying to regain some strenghth back from being so bed ridden the last week.  
Any Ideas??????

     Gee wiz......I sound Like a Debby Downer!  Sorry......  :)  
Guess I get down sometimes when the AD and MS run my life.......BUT!!!!  This too shall pass!!!!  
Thank God for that :)

     So lets hear about everyone elses "Good Week"  to come!

Hugs to you all,
~Tonya

[laurab2818]

Hope this week is better for you.  It is easy to get down when you are feeling worse than usual.  I am coming out of a bad flare of pain & migraines and it definitely affected my mood.  Am feeling grateful to be back to my regular lousy self.  LOL  

Hang in there!

Laura

[beema36]

Patient915
Happy late 18th birthday! Hope it was a good one. Also good luck with the online classes.

I am thinking of getting a recumbant bike as I know we need to keep moving in order to stay strong but is hard when standing long is an issue. That is a great idea. Thanks for bringing it up.
Beema

[LivingInHope]

  Well, I have been having at least one appointment a week lately with one doctor's office or another/radiology department.  Had a pituitary MRI on Friday about my tumor (it had been about 13 1/2 months since the last MRI for this).  I need to trust God about the tumor situation.  It is difficult waiting for the results.  Took a pill last night that made my tachy worse this morning I think.  Recently added cytotec due to very frequent heartburn, even w/maximum dose of ranitidine.  Also, the GI office has scheduled another colonoscopy due to GI bleeding and ferritin dropping.

[vbc2000]

Well first of all, I want to wish everyone a good week :)  I hope you make it thru everything you have to do, and I hope you can find some joy in every day...I will be trying to do that myself.

I am going to be having a full week at work after being off for my husband's step-father's death two days last week.  We get a few days bereavment leave when a family member dies and we took Thurs and Friday.  I was very thankful for the time off even though it was kinda filled with sad stuff.  Any time I get off from work is a gift...it's really tough for me to make it thru the work-week lately.

It will be my first week working on Midodrine so I'm going to be keeping good records about how I do on it.  Seeing the Cardiologist next Monday so I need to tell him how it's going.  So I'm actually just going to be plugging along at work...which is more than enough of a challenge.

I really enjoy good TV and a few new shows are starting this week, so I'm looking forward to some good fiction and some good escapism :)  I'll be burning my Yankee candles, wearing purfume, and trying to inject beauty in my day whenever I can...just little things to feed my soul :)  They really help.
Stephanie

[patient915]

I've been reading this weekly thing for a while but I will finally post (just because you guys seem so cool)!!!

I'm hoping to hear back from DYNA kids this week as I finally decided to join.

Last week I turned 18 and I was hoping that would qualify me as an adult, but then when I went to get an ekg (because I am about to start domperidone which can cause heart problems) and they said I still needed a pediatric one...shoot!!

I'm going to be working hard on my online college classes this week, psychology and statistics.  Statistics is really fun, psychology is getting a little boring.

tonyad: Have you tried a recumbant bike?  I've found that for me it is really helpful in regaining strength, but I don't know what can be done with MS.
lilmissposey: I'm on the same road as you, just trying to find the right treatment.
christydrake: I love Shrek too!!!
Beema: I've been thinking about getting a flu shot too soon, because for me (and other dysautonomia suffers too I bet) even a cold is horrible.

[beema36]

Tonya- I hope your Drs can come up with something to help u. As far as regaining strength give your body plenty of TLC.:)  
Ok I.will be Debbie Downer:( I am about to give up on finding anything that helps my ms or ad. Whereas I.used to.have a good day or.even a few good hrs its just not happening anymore:( Getting so hard to do anything and.I know my families getting tired of.picking up the slack. Ok enough of my.pity party.
Mon.-going to.try again to.get contractors out here to give us bids on fixing the brick and cement on front porch which suddenly starting crumbling and bulging. Is just plain weird. Had this house built 14 yrs ago and suddenly its falling apart:(
Tues.- see about setting up apps for my and dh flu shots.
Wed.-rest I hope.
Hope u all have a good week and that u feel.better Tonya.
lilmissposey-hope ep.comes up.with good.treatment plan for u.
Christy- lucky u I Love Shrek:) Have fun and enjoy.
Beema