Help with Symptoms

[rondoo]

I have been going to doctors for 2 years with multiple complaints with no answers.  I have Mitral Valve prolapse, history of SVT which I had 2 cardiac ablations for,  and thyroid cancer with total thyroidectomy.  I have extreme fatigue, activity intolerance, get out of breath with minimal activity, have palpitations and PVCs, cannot tolerate heat, dizziness, vertigo, edema, anxiety, depression just for starters.  How was everyone diagnosed and what kind of doctor diagnosed you?  Do these symptoms sound familiar?  My list of symptoms is longer....these are the most bothersome.

[Red_Star]

I had many of these symptoms from magnesium deficiency actually. I diagnosed myself online after years of unexplained symptoms that were getting worse. My heart episodes were worsening. The last episode was 250bpm for 7 hours and my blood pressure was so high it wouldn't register.

My existing magnesium deficiency worsened after surgery and then worsened even more with high doses of vitamin D3 supplements. Within a few months of supplementing with magnesium, my 50+ magnesium deficiency symptoms were gone. :)

Magnesium deficiency is very common with MVP. Magnesium deficiency is even a cause of MVP in some people. Recommended to give magnesium chelated with amino acid supplements a try. There is also transdermal magnesium as well which many prefer. Do not take magnesium if you have issues with your kidneys.

[Heiferly]

I've read your post multiple times and struggled with how to respond and I think the reason boils down to this:  (as, admittedly, is the case with many of us here) there are quite a few confounding variables in your case as you present it to us that make it nigh impossible to even begin to suggest much.  Unlike many of the people who come here asking about diagnosis, it seems that you've already been a good ways down that road and come up with *some* answers.  What I am hearing when I read your post—and please correct me if I'm wrong—is that you just don't feel that the diagnoses you have received so far are sufficient to explain all of your symptoms.

I can say that THAT sounds familiar ... that many end up investigating autonomic dysfunction as a possible explanation when they have some handful of disparate diagnoses and still no ... satisfying? (not sure that's the right word) ... diagnosis to explain their entire body of symptoms, particularly when the symptoms cover multiple body systems.  

Some of the tests that are done in the course of diagnosing dysautonomia you've likely already had, owing to your other conditions.  Often cardiac testing is performed (EKG, echo, holter monitoring), followed by a Tilt Table Test (which may be done through an electrophysiologist/EP cardiologist or a neurologist who has some knowledge or sub-speciality in autonomic).  Depending on your symptoms and the result of the TTT, further autonomic testing may be warranted.  Some autonomic tests are only available at specialized autonomic clinics which are only located in a handful of hospitals in the US, but fortunately these tests are only necessary in a limited percentage of cases.  

Considering your exercise intolerance and shortness of breath with minimal activity, I would recommend you discuss with your physician whether a cardiopulmonary stress test might be helpful in your case:

http://www.chfpatients.com/tests/vo2.htm

I think that this test is often reserved for specific diagnoses so many other cardiac patients end up getting a regular stress test or a stress echo instead, but having had all three in the past myself, I have to say that as a person with dysautonomia, it was the CP stress test that gave me the most information about my condition.  Well, that's my two cents on that, actual value may vary.  Hehe.

Best to you, I hope you will update us as you are able,
Heiferly.

[LivingInHope]

Are your synthetic thyroid hormonal levels in balance in your body?  If you are hypo right now, that can potentially account for low energy and depression.  

Have they made sure you are not iron deficient (ferritin, iron and iron saturation percentage testing)?

I was diagnosed with postural orthostatic tachycardia syndrome by way of a tilt table test conducted by a cardiologist called an electrophysiologist (like the kind that does ablations).   Are you no longer having SVT episodes?  

Have they done an echocardiogram since you are having edema?