can you have pots if...

[Kasper87211]

Can you have POTS if you dont Faint?

I mean i FEEL my Blood pressure Drop as my heart rate drops.
I am also anemic but on cardizem for SVT, Thing is, its such a small dose.. 120mg 24hr.

I stand up.. my heart rste jumps to 150-160... sometimes only 140..

i do have real bad anxiety as well..

Very deconditioned as well.. Starting physical therapy etc..

any ideas?
5 "11 110 pounds male..

Ya not good. Can i rule out pots by myself.

it bothers me because my resting BP never leaves 85-90 / 55 60 range unless im eating or something.

SALT doesnt help..

[LivingInHope]

You're saying your very low on hemoglobin (HGB) then?  Was looking some about Crohn's- it looks like the aim is to knock down the inflammation.  I saw that if other drugs aren't working well, infliximab (Remicade) is a powerful new drug that can only be used on a short term basis that seems to help knock inflammation down.  Have you heard of it?  It looks like it can have serious side effects though.

[Kasper87211]

yes i am on TPN, I think Im good on fluids. The other issues yes are VERY Low HBG, and Deconditioning. Crohn's is causing this. : infimation. So all that.

PT starts today.
Should be better in months time. If not, than yes, ill need a Dx.

[LivingInHope]

Did they not call the SVTs isolated incidences then?  Iron deficiency and deconditioning can make your heart work harder- but if you get those two taken care of, and you still have a problem with your heart rate jumping by 30 + points just from standing up or doing minimal activity, you might ask your doctor for a tilt table test.  Do you know what's causing the iron deficiency?  

Also, in one post, you said you could use more fluids & in another, you state you are on TPN and get all the fluids you need?  

[Kasper87211]

well the 3 week moniter Showed only 1-2 TRUE SVT's only in the beginning.
the tachycardia he saw said was HIGH but Normal Sinus rythem,

The Physical Therapist is coming tomorrow and thinks the Anemia and lack of muscle / movement or conditioning is a huge Roll..

[globalhiking]

Hi Kasper,

I wanted to ask you about the SupraVentricular Tachycardia (SVT) that you mentioned -
How were you diagnosed with it? Was it more than just an EKG?
SVT is just a broad term given to fast atrial arrythmias, when it is impossible to count the P waves on a EKG.

Your doctor should refine your diagnostic of SVT. He needs to specifically find out the arrythmia that you have. Very important for treatment outcome.
Example of arrythmias falling under SVT are - Atrial Flutter; Multifocal Atrial Tachycardia or Junctional Tachycardia.

Any of those can give you symptoms like the one you are describing - HR between 100 to 200 beats/minute, dizziness or low BP.

For the Cardizem your dose of 120mg/day is a tad low, as the usual dosage range between 180 to 360 mg/day. You should ask your MD if it is really the best antiarrythmic for you, if yes, maybe he could bump it up a bit to see if it helps your symptoms.
Maybe he was conservative because of your weight.

You also mentioned that your resting BP can be '85-90 / 55 60 range', has the Dr told you that Diltiazem should be witheld if systolic BP is <90 or diastolic <60?
Can you monitor your BP at home?

I just realized, looking at your last post, that you are on TPN (is it through a central line?); I am not surprised that you are having such a hard time :-(   and feeling all over the place.
I really wish you the best on your road to recovery, and please keep us posted :-)

[Kasper87211]

nope, i CAN feel my BP drop... when i sit back down yes,
i also dont get dizzy.
anemic yes, but not so anemic my doc says to have 160 hr moving.

im on TPN so i get all the nutrients and fluids i need.

im very DECONDITONED and thin though.

resting pulse is 75-100.
standing is 130-160 depends. weird.