lumbar puncture weird side effects...help!!

[brethor]

Hi all

I am really freaked right now last friday I had a lumbar puncture for some testing and since then I feel like I am in hell!!! I am experiencing a whold slew of horrible sensations and am not sure why. The doc who did the lumbar puncture says its not related because they have started 4 days post but Im starting to wonder because these symptoms werent happening before the procedure....the symptoms are;

horrid head pressure and pain especially when standing or sitting up
bad neck pain
I can hardly walk my balance is completely shot
horrible burning hot flashes throught my whole body
debilitating chills/ not at the same time as the hot flashes
constant adrenaline rushes
inability to stay awake.....but will fall asleep for 10 mins and be woken suddenly by adrenaline and burning
burning in my toes and back at the puncture site


help, please!!!!! I feel like i am losing my mind my body is completely out of control!! as anyone ever experienced this ever????? could it be side effects or did the puncturne make my dysautonomia worse?????

Bren

[heeler50]

  my two cents for what it is worth. When all of this started with me I was put into the hospital and one of my tests was a lumbar punctur. Sorry if anything is horribly mispelled, my spellcheck is not working and I had a migraine so anything could come out of my fingers and look okay. After the lumber I was in the hospital for a couple of days yet but when I went home I still was a non functional mess. I would get up and not be able to stay up have to go lay down because of head pain, crushing fatique and general odd feeling like everything was tipped to the side or maybe I was tipped and everything else was tipped the otherway made it very hard to walk let me tell you. It was a weird time. When I complained  to the neuro he didnt know why I would feel that wau just chalked it up to my general condition which was pretty rotten at the tiem. I think it was the puncture. I slowly came out of it but have avoidec them like the plaque ever since. Hope you feel better soon.

[Misterry]

For 3yrs I had controlled HT w/Lisinopril/HCTZ 20/25 & Norvasc 5mg. I was a very healthy 44yo Fe, 4'10 110lbs. In Jan 07 my Ins Co said they wanted me to switch from Norvasc to Lotrel because they were "the same & it was cheaper". My Dr kept me on the Lisin/HCTZ & added Lotrel 5/40. 12 days later while out watching the SuperBowl I went from being totally fine, to vomiting wetting my pants & collapsing. At the ER my BP was 56/48. I was given 2ltr LRS a panel which showed very unhappy kidneys & after 3hrs w/my BP up to a whopping 80/54, I was given a shot of Toradol & Phenagram, told I was overmedicated & sent on my way. Things haven't been the same since. I tried to go back to "the Dr", but he wouldn't see me & I was cancelled by my Ins Co so noone wanted to see me.

W/in a few days I was having speech, memory & cognitive issues which joined my daily companions Chronic Migraine & Nasty Nausea. These problems were soon joined by intermittant rt side tremors & dx of Dysautonomia (no temp, BP, HR control, awareness of hunger or fullness), dystonia, RSD, vasal vagosyncope, & orbastatic hypotension; my ACTH & Cortisol run low, my thyroid sleeps most the time as do I, 12-14hrs/day & have gained 40lbs :(,  My menses stopped for 14mn, came back w/a vengance, went away again but now I will intermitantly bleed & my estrogen is undetectable whilst FSH, Prolactin, & LH are up & down, & AST is creeping up. I have progressive vision loss, photophobia, an unequal pupil in the rt eye & blephorspasm; I have tachacardia, aortic insufficiency, sleep & GI issues. I also crave cottage cheese, vinegar, lemon juice & hot sauce. I also have an extreme sensitivity to meds so currently I take Lisinopril 10mg SID, Propranolol 20mg BID,  Prevacid SID , Zofran 4mg PRN, & Naproxin 500mg SID.

All the docs say just an odd coincidence. I went from 200. Depending whom I'm visiting they will only look at their "specialty", not the big picture. Neuro says most problems are "in my head" somatoform disorder, PTSD sees no need for any further visits & thinks I should go to the NIH. Neuro-Op says just go away, like to Mayo in Rochester. Endo says "hope its not your Hypothalmus, lets just wait & see." My PCP just keeps trying to keep what he can under control.

An MRI w/Cont 2+yrs ago showed some frontal lobe shrinkage. Any test suggestions or ambitious med student that is curious.  Any suggestions, comments, theories or  a guess on what next would be greatly appreciated.

[buddysmom1]

I recently had a blood volume test it was actually a simple test but they inject some sort of radioactive substance into an IV in your arm before they do the test. They said there was no side effects but about 4 hours after the test I had a horrible reaction too it, the same thing as you my balance was off and I had horrible chills horrible head pressure, I asked them about the cause and they assured me it was not the test. I think our bodies are very sensitive to anything done too it and the dysautonomia kicks in big time just my thoughts, but they should check and make sure you did not develop some sort of infection from this, as i am sure this is a possiblity.