Rarely, non-epileptic seizures can occur in relation to syncope due to severe oxygen deprivation to the brain. It is possible that this might be what you are experiencing.
This describes a few cases of anoxic seizures, though it doesn't specifically get into cases of people who have chronic neurocardiogenic syncope rather than syncope that is, for example, triggered purely by aversive stimuli like the sight of blood:
http://www.john-libbey-eurotext.fr/en/revues/medecine/epd/e-docs/00/01/AE/8A/article.phtml
Also, do you know if they said the tilt table was "negative" because you didn't faint, or because you didn't display any abnormalities whatsoever? The interpretation of this can vary from doctor to doctor, and it's an important distinction, because the former definition of a "negative" tilt test gives next to no information about the actual results of your test and may obscure what would actually be interpreted as a positive test elsewhere. (For example, fainting is not a part of the diagnostic criterion for POTS, so if they're only looking for a faint to "earn" you a positive test, they may overlook POTS entirely. This unfortunately is not uncommon when dealing with docs lacking significant dysauto experience.) Have you requested and received the full records from your tilt yet? It may be easier to sort out knowing the details of the tilt.
This sounds a lot like epilepsy. My doctor's are trying to diagnose me with epilepsy because my hands start to shake right before I pass out. I do not have any of the other symptoms of epilepsy (rigidness, shaking body while passed out, biting of the tongue) so I do not think that I have epilepsy.
Hi,
Ive just read about your problems with figuring out what going on, Im sorry to hear that you've had no luck finding the cause. I had very similar experiences, and have had years between faints, which as you pointed out does not make it any easier to diagnose! Its sometimes hard to catch what's really going on when only given a window as short as 24hrs. Im not sure about you but Im always fine and dandy when i go for tests!!
Im 25 and have Vasovagal Syncope, sometimes reffered to as VVS, Reflex Syncope or Neurocardiogenic Syncope and i pass out regularly, to the point where i was off work for 9 months.
If you're still experiencing problems, I really reccommend checking out CRY, Cardiac Risk in the Young and STARS.org.uk, they're the Syncope Trust And Reflex anoxic Seizures charity, thy've been amazing and may be able to point you in the right direction, eg Drs, tests etc, even with how to educate others on the subject.
You're not alone in this, keep fighting to be heard, its the only way I managed it!!
maggie