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GLIOMATOSIS CEREBRI...
Hello, I am writing this with extreme gratitude for any information provided.
My boyfriend is 27 years old, slightly overwieght (as he is/was naturally very thin but is now about 15-20lbs overweight), and he works out regularly. In the past year he has had bronchitis at least 3 times, his tonsils removed and has this awful dry cough that won't quit (i say for the past few months).
In the past few months many symptoms have developed... He has become very fatigue, extremely thirsty, more sweaty, constantly runs high fevers for a few hours and then it will break, he seems depressed and unmotivated. He had been vomiting(up to a 10day spout) which has since calmed, developed a dull pain on his side and back which comes in and out of severeity and has recently (the past few weeks) had a few spells of numbness in both legs (it has caused him to be unable to drive---- I literally had to reach over him to stop the car becuz he had lost all feeling!)
The doctor had run two sets of tests and his liver enzymes have come back high... The only real indication she has given is possible liver cancer. He is not a drinker nor a smoker. In his history he spent two years in Argentina and had to come back to the States due to a parasite. No hepatitis present. They ran his blood a third time and liver enzymes returned to normal but symptoms remained preset. An MRI/CT was performed.
****CT/MRI came back and they declared "gliomatosis cerebri." I am extremely shocked and horrified by the news!!!! He has already began treatment as this is an aggressive form of cancer with poor prognosis (avg. survival 12months)...
My gut tells me something is very wrong with this--- I know the symptoms vary widely however, it just doesn't add up to me!!! This is inoperable but could we demand a biopsy?
Please help! If you know of any tests we should request at this point. I am very very skeptical of doctors and feel it is best to try to become as knowledgable as possible to make sure we resolve this as quickly and effectively as possible. Any help is greatly appreciated. Thank you!
My boyfriend is 27 years old, slightly overwieght (as he is/was naturally very thin but is now about 15-20lbs overweight), and he works out regularly. In the past year he has had bronchitis at least 3 times, his tonsils removed and has this awful dry cough that won't quit (i say for the past few months).
In the past few months many symptoms have developed... He has become very fatigue, extremely thirsty, more sweaty, constantly runs high fevers for a few hours and then it will break, he seems depressed and unmotivated. He had been vomiting(up to a 10day spout) which has since calmed, developed a dull pain on his side and back which comes in and out of severeity and has recently (the past few weeks) had a few spells of numbness in both legs (it has caused him to be unable to drive---- I literally had to reach over him to stop the car becuz he had lost all feeling!)
The doctor had run two sets of tests and his liver enzymes have come back high... The only real indication she has given is possible liver cancer. He is not a drinker nor a smoker. In his history he spent two years in Argentina and had to come back to the States due to a parasite. No hepatitis present. They ran his blood a third time and liver enzymes returned to normal but symptoms remained preset. An MRI/CT was performed.
****CT/MRI came back and they declared "gliomatosis cerebri." I am extremely shocked and horrified by the news!!!! He has already began treatment as this is an aggressive form of cancer with poor prognosis (avg. survival 12months)...
My gut tells me something is very wrong with this--- I know the symptoms vary widely however, it just doesn't add up to me!!! This is inoperable but could we demand a biopsy?
Please help! If you know of any tests we should request at this point. I am very very skeptical of doctors and feel it is best to try to become as knowledgable as possible to make sure we resolve this as quickly and effectively as possible. Any help is greatly appreciated. Thank you!
thank you for your response...
A gliomatosis cerebri means that rather than forming a mass, gliomatosis cerebri develops as threads of cancer cells which spread through the brain.
From what I read, his symptoms sound like that they are attributable to the tumor.
You can consult with another cancer center with his records for another opinion.
From what I read, his symptoms sound like that they are attributable to the tumor.
You can consult with another cancer center with his records for another opinion.
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