GP tells me that my pituitary tumor is nothing - I'm not sure what to do next

[nattt]

I went to my GP about 4 weeks ago as I had developed a large hump on my back (it seemed quite sudden).  I had googled the possibilities and saw that Cushing’s Disease was a possible cause.  My father had a very large pituitary tumor that destroyed his pituitary gland, so I was eager to find out what was going on.  On December 23rd my GP called me the results of my MRI, I have a 6mm adenoma on the right side of my pituitary gland.  He also tested my cortisol levels and told me they were normal and I therefore did not have cushing’s and the adenoma is nothing to worry about – he told me some people just get them.  He has not referred me to a specialist and plans to do an ultrasound of the hump next.
Note: that I also had an x-ray that did not show any neck/spinal problems.
I would love your thoughts and advice as I am not as relaxed about the issue as my GP.

[lbedford]

Are you stating you couldn't view my photos?

[lbedford]

Just like it's been pointed out by others here, I think it's best if you throw away the preservative packet in the jug. I had the only high reading without it (I've had 6 altogether over the past 2 years). Be sure and refrigerate it.. I didn't know about the freezing of the salivary tubes until I read it here after your posting... thanks guys!!

Like I said I'm going to request the midnight serum cortisol, not the one where you stay in the hospital, but the walk-in. I've read the medical journal that has allowed for walkin-ins and they stated they had a good sensitivity with a cut-off value at  8.3 ug/dl. This test is referred to as the F24 and it states that the F24 is superior to the 24 hour urine (UFC) in the diagnostic approach to a patient with suspected CS.

Regarding the dex test, they won't do it unless they get a high cortisol reading from one of the other tests i.e., 24-hour urine or salivary.

Just a thought...  Best of Luck and God Bless

[testdeprived]

Photos (2)
No photos

[lbedford]

Looks like I need a psychiatrist...right  (lol) Honestly, you've said it in the past.. endodummies, and now I'll add to that list, neurology-logicaldummies.

[rumpled]

I looked at your pics! WOW! What a difference... but I bet the docs will start off that you are 15 years older blah blah blah but your ears have disappeared...

I hope you can find a decent doc.

ps - look in her profile!

[testdeprived]

no you didnt