I so agree, I want a pain free normal life, everyone is different, experience and deal with the ups & downs of life differently. Due to my health I am unable to make long-term plans for the future. I battled alcoholism for many years and made many resolutions & promises to other people and to myself that I would stop but they never lasted. I eventually got the help I needed, I wish I could get the help I need now from the Dr's whose care I am under but so far they have let me down. I take this disappointing treatment with a little smile otherwise I would end up going crazy. I often feel helpless and depressed when dealing with Dr's, I know I have to fight my own battles with these people, no one else will. I take every thing one day at a time, I don't think about or worry about what tomorrow will bring.
I would like to have more patience. And a yes also teach my dog to fetch a beer LOL.
I have also heard the same thing rod44 we shouldn't set goal's for ourselves because we just set ourselves up for failure. For me I am not making it a goal, but same as above, just to have a little normal life would be great. New Year, New thing's to look forward too. Happy New Year everyone. A Pain Free Year!!!!! Yeah
I am giving up giving up things for the New Year, It never lasts more than a few hours with me anyway lol.
Happy NEW YEAR everyone
hmm...
since i just had my surgery two weeks ago, i only hope to be back to normal. i just want to feel my energy back, i want to play with my children, i dont want to feel any more pain, pressure. i want to sleep, i want to walk and do all of the super woman things i use to able to do!i want to work, as a school social work, i helped children and families, i love my job, and miss my kids!
is this enough?
i pray everyone on this forum gets what they want?
OMG...ROTFL.....teh "bring me a beer" got me....lol...sigh...that is the attitude we all have to go into this new yr with...what can we do...yeah : )
and train those around us to bring us a beer or a glass of wine... : )
<3 it
Be optimistic, focus less on the pain and more on things that distract me from it, stick to any chiari lifestyle modifications instead of getting frustrated.
Basically, less "what I can't do" and more "what I can do." Example: playing with my dog can be a pain because when he fetches, he likes to just drop the toy on the ground in front of me. Not cool for someone who can't bend over. So instead of giving up and not playing, I've been putting a ton of effort into training him to put things directly in my hand. "Bring me a beer" next on list lol.
I won't call this a new year resolution, but just something I've been keeping in mind a lot lately.
I just want improvement:) it looks like the New Year will bring me a plan by my NS:)
I actually want to be healthier as in exercising. Part of me is like how since things hurt so much and I have no energy but part of me is thinking if I have all these issues, I need to get my heart stronger, build my muscles up and I also have low bone density to the point of borderline osteoporosis at 32 so I need to do something to fix these things. While I'm not overweight etc, I'm also smart enough to know I'm not healthy either. I have a pretty sedentary lifestyle and am actually shocked I am not obese. I think my gastroparesis has something to do with that. If I actually got the nutrients from the junk I shove in my mouth, I'd probably be a good 60 pounds or so heavier.
I hope I can somehow become normal again. I want to be able to play with my kids & do more for my family. I want to also be pain free. I wish to get rid of Chiari which I know will not happen now but someday i hope for a cure.
As this last year brought me the dx, decompression surgery and spinal surgery I pray that all of that enables me to start getting some of my old self back so that I can be a more active mom again, I miss my family and want to be an active vs passive participant in my life.