Thanks Pam it truly is a different experience. :)
Selma,
I'm not really sure if I actually have Elhers-Danlos or Tethered Cord? That was the part that was a bit confusing.. June was the one that had me doing the flexibility tests and I could do all but two of them and I asked what they were for and then she said to see if I have Elhers-Danlos. Dr. B did say that he suspects I have Tethered Cord. It's never been in any of my scans but I have had urinary issues and I do have degenerative disc disease in my back. He ordered a test for me to have done with a urologist that I guess will help confirm whether I have it or not. How was your Tethered Cord diagnosed? Did he operate on your Tethered Cord as well? How long is your scar? Did he make the long scar then the scar across the top?
Krista
So glad to hear u have a dx and a course of action.....I had my surgery at TCI and am happy that I did......
May I ask, do u have Ehlers-Danlos too? Just curious...as I also was dx with TC, but I was aware of that dx b4 I got to TCI as it was on an old report I had dug up and no one told me about it except the drs at TCI.
Keep us posted on what u decide to do next
"selma"
It does make a difference when you finally get to a specialist. It seems amazing how much we go thru to get to a doctor that understands. I am glad you finally had a positive experience. Keep us posted with your decision.
Pam