Fibro or DysAutonomia??
I was Dx with Fibromyalgia 4 yrs ago…but have had “what I thought” were Fibro symptoms since childhood. However, after a total hysterectomy when I was 25…my symptoms worsened…then became SEVERE with numerous new symptoms, as of 4 yrs ago!! The more I research…the more I’m convinced that I may have something else. I’ve been tested for MS, Lupus, SjS, Wegener’s, Lyme, etc…ALL negative…also suspicious of Parkinson’s, etc… However, I’ve tested positive on 4 ANA Titers…thusfar. A number of people have suggested that maybe I have DysAutonomia. ???
These are my list of symptoms:
• Numerous paresthesias (numbness, tingling, pins-&-needles, burning, stabbing, bug biting/crawling, itching, vibrating/buzzing, etc…sensations)
• Fluctuating body temps…freezing/shivering one minute…literally sweating the next (constantly swinging back & forth…wake up soak & wet from sweat at night sometimes…this is NOT menopause…as I had Total hysterectomy at age 25)
• Irregular breathing & heart beat patterns; continual palpitations
• Feeling faint when I stand up from sitting/laying down (have done this since a child)
• Passing out/feeling faint after a hot shower/bath (have also done this since childhood)…heat intolerant since adulthood – makes me ill/faint/weak
• Severe Anxiety attacks out of nowhere (no reason for them)…that can last for days on end/keeps me up at nights
• Dx with IBS (possibly gastroparesis…according to previous testing)
• Bladder/bowel issues (can’t control bladder…or on occasion, bowels)
• Off-&-on spells of severe chest pains (admitted to ER recently as possible heart attack victim…had all signs…chest pain in center, severe nausea, dizziness, & arm numbness for 24 hrs+)
• PAIN that moves around: flu-like aching, stabbing/electric-shock like pains
• Severe muscle cramps & stiffness…especially in neck/shoulders & legs
• Severe muscle spasms/contractions: have had left side of face to “draw up” several times, & now it seems semi-paralyzed; have severe jaw muscle contractions that lock my jaw/mouth shut
• Muscle weaknesses where sometimes my legs will just go limp…like “noodle legs”…or sometimes I’ll just suddenly drop things, as if my hands/fingers quit working…right-hand wrist sometimes goes limp (although, have had carpel tunnel in right wrist years ago), can hardly open lids anymore
• Vision problems: goes blurry; lost center of vision in left eye for 3 months, 2 yrs ago
• Tremors as of 4 yrs ago (head & right hand…but have had all-over body tremors also…have been having frequent, odd “internal tremors” as of lately)
• Have been Dx as Hypoglycemic as a child…but also have severe hypoglycemic symptoms any time I get hurt (even mildly…such as falling, bumping into things, or smashing a finger) or experience sudden stress/trauma
• Horrible balance/coordination issues: always feel like I’m “falling to the right”…always dropping things, knocking things over, tripping over nothing, etc… (was never like this in younger yrs)
• Cognitive/Memory problems: can no longer remember anything or recall words/names; can’t concentrate or multi-task; have frequent “brain crashes” where my mind completely shuts down for a short duration & I’m completely unaware of surroundings/events till it “comes back online” (people have suggested that maybe I’m having partial/complex seizures?); can’t calculate; etc…
• Speech/language problems: stuttering, dyspraxia, dysarthria, dysphasia (all come & go at different times)
• Dysphagia (swallowing problems…food gets backed up into velopharygeal cavity…have to tuck my chin to swallow)
• Diagnosed with Migraine Disorder
• Severe sinus/allergy/asthma issues (had a sinus surgery 7 years ago…that I have YET to heal from)
ANYONE with comments/advice??? Thanks
~tj