Good to see you here again NoFluxes.
Great on getting the appointment! That is really good news. Let us know how that goes.
It will be good to have a resource who can help and offer a plan. We all need that.
As for exercise, some people sit on the floor and do stretching or rowing so the blood doesn't pool in their legs. It is really important not to do more then a little in the beginning and build up slowly. Resistance exercises can be done sitting on the floor as well. I have been reading a lot about this as I need a better routine myself. I sometimes wish they made those low slung "hot wheels" type bikes for adults. !! (Don't think I would last but a few minutes but it sounds fun and my legs would be out not down. I would want a purple one of course. ) I have read that exercise can be as little as a few minutes of fast walking interspersed in the day and building up to doing it more times during the day. It does not need to be all done at once and actually that would be too tiring for most. The main idea is to keep the body conditioned and to do some aerobic, some strength training, and some resistance exercises, Not overdoing is as important as doing the exercise. Too much undoes the good we are trying to achieve.
Christy, the water jogging must have been great fun in the summer for your son.
Marie
I am glad you have an appt with a doctor who might be able to help you. Be careful not to over exercise though. Exercise is good, but can also throw your symptoms into chaos. So make sure not to over do it. My son built up a tolerance for water jogging during the summer but it took a couple of weeks.
I hope your appt will bring you answers and a treatment plan that helps,
Christy