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Endometriosis or something else? PLEASE PLEASE HELP ME

I want to know what's wrong with me. I have all the symptoms of endometriosis but nothing has shown up on tests. Before my period and after my period I have had pain in my lower right side in my pelvic area. During my periods I have horrendous cramps that basically leave me debilitated. I will have diarrhea but the pain feels like intense constipation. I will get shooting pains up my anus and vagina when sit down on the toilet and try to "go". I bleed heavily during my whole period and have to wear a tampon and maxi pad to bed. I went to the hospital with what I thought was an appendicitis but nothing showed up on tests and not even the morphine could help my pain (this was a week before my period) they sent me home with some Norco and that didnt help at all. I went to a follow up appointment with my primary physician and she said I needed to see my gyno because it could be endometriosis or PID. I'm almost positive it isn't PID because I don't discharge at all and no other symptoms of an STD so I'm left with endometriosis. My gyno did all the tests and found nothing then had me take my bc pills continuously so I wont get my period but I have done this before on my nuvaring and bled for 2 months and cramped the whole time. It has now been over a week since my gyno visit and I still have a horrible cramping pain in my lower right pelvic area and it was subtle for a few days at first and now today it is intense. I feel like my gyno isnt really listening to me. I may be being over dramatic but I AM WORRIED!!!
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136956 tn?1688675680
I have to fellow endosisters in South Africa and one responded with

"For endometriosis I have been told Prof van der Merwe at Vincent Palotti Hospital."

Still waiting for the other to respond and I will also check somewhere else. I'll be back soon
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Avatar universal
im sorry its south africa thank you very much for ur responce
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136956 tn?1688675680
I just want to confirm where SA is. South Africa? Sacramento? Sorry I am from canada not sure what that abbreviation is . Let me know and I can find you one :)
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Avatar universal
hi ticked do u know of any endo specialist in SA bcz im having all the symptoms for endo bt my gyn stil insist that he doesnt c anything and i'v jst had miscariage and i think its bcz of my endo.....i realy want another child plz help
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136956 tn?1688675680
Well you are in luck if you can go to either of these doctors. They are the best of the best and you have an option to go to either which is like winning the Endo surgery lottery to be honest. There are only a handful of Endo specialists around the world and you are situated near the best of the best.  

Dr. Andrew Cook
Vital Health,
14830 Los Gatos Blvd,
Ste 300,
Los Gatos, CA 95032
T. (408) 358-2511

Specialisation: GYN only
Bowl/urinary tract surgery: Does some bowel/urinary tract work.

*Dr. Cook's practice offers a functional approach to treating endometriosis.


He also has a book called "Stop Endometriosis and Pelvic pain" which is an amazing amazing book.


Dr. Camran Nezhat
Center For Special Minimally Invasive & Robotic Surgery,
900 Welch Rd
Ste 403
Palo Alto, CA 94304
T. (650) 327-8778

Specialisation: GYN only
Bowl/urinary tract surgery: Does some bowel/urinary tract work.




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Avatar universal
I have had terrible cramps since I was about 14 (I got my period at 11) they have gotten more debilitating as the years have gone by. I'd say the pain before in after is a kind of new or maybe just much more noticeable. I live in Novato, California!
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136956 tn?1688675680
I don't think you are being over dramatic at all.

It took 14 yrs to diagnose me with stage IV Endo and it was only due to the fact I grew an endometrioma after the birth of my daughter.

I also had rectal pain and I had rectovaginal endometriosis.

You will not see Endo on a scan unless you have an endometrioma. Also if the bcp isn't working it's possible you have moderate to severe disease as usually hrts will not work at that stage.

You really need to find yourself an Endo specialist. Let me know where you live and I can find you one in your area .

If you are interested you can read my journals there is on there called endometriosis and migraines which might help.

Did this pain just start or have you always had it? When did it start?
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