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Interstitial Cystitis and Endometriosis
Ok so I went to get a second opinion today after being diagnosed with endo after a lap in November of last year. The doctor was fabulous he spent almost three hours with me. Anyway. He doesn't seem to think that the small amount of the endo that was seen could cause the large amount of pain that I have. He thinks I could possibly have interstitial cystitis also. Does anyone out there have this condition or have both. I have done research and it definitely seems like a possiblity. Just curious about how you are treating yours if you do have it. Very confused. Thanks
Well I had the pst and it was unclear if that was what I had or not. So the NP that I saw decided that since it was pretty close to positive that they were going to go ahead and treat me. She put me on Elmiron. BTW thanks for the hint about the coupon. That was a big help. They are also going to do six weeks of bladder instillations in the office to see if they help. She said that since it is so hard to diagnose that a lot of the time they treat it first and if the symptoms improve they know that is what they are treating. So we will see how it all goes. Thanks again!
He said we would start with the potassium sensitivity test. And go from there. I go in for that next week. I have been looking at the diet and I really don't consume anything that are triggers. No caffeine, no juices. I do eat chocolate occasionally. I don't know I just want a diagnosis and to treat whatever is going on. Thanks you are always helpful
I have IC and I treat mine two ways-- I stay away from foods that trigger it-- for me it is not the typical I actually cannot have the foods that they say should not cause a reaction-- such as pears. I also minimize my amount of citris and citric acid. I also cannot not drink apple or orange juice (I am sure it also goes for grapefruit but since I do not like it, I will never know.) Also I know being gluten free helps because IC is autoimmune.
I also take Elmiron-- it is a pain because I have to take three times a day on an empty stomach, but for me it is worth it. It is expensive I hope you have good insurance.
Last did your doctor say how he would diagnose it-- the potassium chloride (KCl) test is not very reliable-- I know I had it. (Also the IC foundation does not like it because if a person does react it will cause a lot of pain. That doctor said that she can guarentee that I do not have IC low and behold when my current doctor did my lap he also did a cystoscopy with hydro-distention-- that showed just how bad my IC was-- my bladder was white.
If you get Elmiron you can go to their website and print out a coupon to save you up to $35.
I hope this helps,
achilles2
I also take Elmiron-- it is a pain because I have to take three times a day on an empty stomach, but for me it is worth it. It is expensive I hope you have good insurance.
Last did your doctor say how he would diagnose it-- the potassium chloride (KCl) test is not very reliable-- I know I had it. (Also the IC foundation does not like it because if a person does react it will cause a lot of pain. That doctor said that she can guarentee that I do not have IC low and behold when my current doctor did my lap he also did a cystoscopy with hydro-distention-- that showed just how bad my IC was-- my bladder was white.
If you get Elmiron you can go to their website and print out a coupon to save you up to $35.
I hope this helps,
achilles2
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