Aa
Laparscopic surgery to remove cyst I didn't have and organs left stuck together
Well, I was told 6 months ago I have endometriosis and had a large cyst on my right ovary. I refused to sign the surgery papers immediately, and before I left the dr told me "You have a large cyst that will continue to grow, and twist and burst, and you will be in the ER having the surgery done by a General Surgeon, who would not clean up the Endometriosis like I would." A few days later I'm signing papers consenting to having a cyst removed from my right ovary, adhesions elsewhere, and a possible right ovary removal. What I ended up with on my chart after the surgery was "exploritory laparscopy, scar tissue removal, and pseudo cyst diagnosis"
I had the surgery last week. I wake up to find out through my parents that the only thing the Dr did was remove scar tissue from my appendix scar. The Dr returned my calls two days later and told me everything. She said my right ovary, fallopian tube and bowel are all stuck together with endometriosis adhesions, against like my pelvic wall, which made a PSEUDO cyst, a large mass that looks like a cyst. She told me it was too dangerous for her to remove, I would have ended up with a bowel bag. She apparently couldn't remove any of the other endometriosis either. I said, so I'm no better off then when I went in?? and she said, I removed the appendix scar tissue. Though it will likely grow back.
She couldn't tell me directly what this meant for me. She told me each surgery is going to cause more scar tissue, making things worse. She told me I want to have children before having surgery again, if I want them.
Is this normal?? Shouldn't surgeons be capable of unsticking organs? Isn't that a normal endometriosis complication?
I also feel very misled. I would not have had this degree of surgery if she had said, "I want to go in and look laparscopically to see IF you have a cyst, and while I'm at it put in 2 other incisions so I can remove some appendix scar tissue." !!
I had the surgery because I was told I had a threatening cyst on my ovary that needed to be removed ASAP.
Now I am off of work , not lifting more than 5lbs for a month, etc, for what I feel was NOTHING because I will still be sick and have the same pains. My stomach is swollen, hard and brusied, extremely so on the right side where she removed the appendix scar tissue.
I had the surgery last week. I wake up to find out through my parents that the only thing the Dr did was remove scar tissue from my appendix scar. The Dr returned my calls two days later and told me everything. She said my right ovary, fallopian tube and bowel are all stuck together with endometriosis adhesions, against like my pelvic wall, which made a PSEUDO cyst, a large mass that looks like a cyst. She told me it was too dangerous for her to remove, I would have ended up with a bowel bag. She apparently couldn't remove any of the other endometriosis either. I said, so I'm no better off then when I went in?? and she said, I removed the appendix scar tissue. Though it will likely grow back.
She couldn't tell me directly what this meant for me. She told me each surgery is going to cause more scar tissue, making things worse. She told me I want to have children before having surgery again, if I want them.
Is this normal?? Shouldn't surgeons be capable of unsticking organs? Isn't that a normal endometriosis complication?
I also feel very misled. I would not have had this degree of surgery if she had said, "I want to go in and look laparscopically to see IF you have a cyst, and while I'm at it put in 2 other incisions so I can remove some appendix scar tissue." !!
I had the surgery because I was told I had a threatening cyst on my ovary that needed to be removed ASAP.
Now I am off of work , not lifting more than 5lbs for a month, etc, for what I feel was NOTHING because I will still be sick and have the same pains. My stomach is swollen, hard and brusied, extremely so on the right side where she removed the appendix scar tissue.
hi, maybe you should check on a different specit,....visit diff doc can give you a better option how to treat the endo.......try not to eat much hormone food (cow, chicken, duck....etc) eat for veg and fish ( more nature) this might help, i have research so many info on endo....maybe try on pill if you can........if you not readly for baby yet.. i'm on YAZ now, just start it. hope this help you!!!
i have endo for 3 yrs from now, i have a surgery remove 1yrs ago (big like grape fruit) half year after surgery is coming back, now total a year apart is 4cm on both side. i did went to ob-gyn specialist with clinical research in endometriosis. she told me endo disease it will alway coming back, there still no other way to cure this disease yet, but birth contron pill can calm and slow down the growth of endo. how can it be in such case the endo can remove completely and no returning???? i wish my never N ever....so upseting when i go back to check up is found out yep, it coming back....
I feel like you didn't read what I said anniebaby. I was supposed to have surgery for endometriosis removal and removal of an endometrial cyst. No endometriosis was touched at all.
Coty, the surgeon I went to is an ob-gyn specialist in minimally invasive surgery with clinical research in endometriosis. She is also a university professor.
She staged me as a 3-4.
Thanks for the replies. I'm in Canada also.
Coty, the surgeon I went to is an ob-gyn specialist in minimally invasive surgery with clinical research in endometriosis. She is also a university professor.
She staged me as a 3-4.
Thanks for the replies. I'm in Canada also.
coty is right. endo specialists are doctors who are skilled in removing the endo. other gynogologists are not as skilled and will most likely leave some of the endo in. there are many women with stage 4 endo who are able to have all the endo removed with bowel ressections if necessary. an endo specialist is able to do this. i would find an endo specialist in your area. it may cause more money for an excision surgery done by one but it is well worth the expense. you will have a better chance of your endo not returning once an endo specialist takes all the endo out. if it is not taken all out- like in your case, the endo gets worse and grows back fast- unfortunetly the pain will not go away. check out these sites:
http://forums.obgyn.net/endo/
http://erc.activeboard.com/index.spark
http://www.roadtripmemories.com/roadmaveness/endolinks.htm
www.centerforendo.com
http://forums.obgyn.net/endo/
http://erc.activeboard.com/index.spark
http://www.roadtripmemories.com/roadmaveness/endolinks.htm
www.centerforendo.com
did you go to an endometriosis specialist/fertility specialist? this is the only person you should go to as they are skilled to remove this - did she stage it for you ie 1-4 4 being most severe? yes skilled surgeons can and do unstick adhesions through laparotomy thats where they cut a ceaser cut as they have more room to work and they can then burn off the adhesions which is like spider webs inside - got to www.endo-resolved.com ok it will help you I am so sorry you are going through this all hunny but this silly surgeon could have removed it she talking nonsense to you- I have extremely severe endo with it I cant fall pregnant I am scheduled for my doctor to remove it next week thursday but I pay a fortune to go to a proper surgeon who does on average 3-5 of these surgeries per week
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