Lupron

[misskay31]

Just got put on Lupron! Anyone been on it and had bad side effects?

[PurpleLush07]

I was on it. I didnt get any effect until 3 months later which took my period completely away and made me very nauseous

[misskay31]

So, I may be period free? That would be awesome! I was also put on 2 hormone pills at the same time. Im not sure if I am showing effects yet or not. I did have pain free sex the other night. And it is never pain free!!
Thanks for the response!

[misskay31]

I had my first injection on the 3rd. And I will be getting 1 for the next 2 months. How long after you started Lupron did you notice a change? Did you still experience pain during and after sex? Did you find one certain position to cause the most pain?
I'm new to this and I am getting very frustrated with the constant pain!!! I'm worried my boyfriend won't want to stay with me if I don't get control of the pain I get from my Endo!!
I personally find that a laying position hurts more than a standing position. Anyone else find that??

[achilles2]

I have had Lupron twice. The first time was for 6 months. The second time (4 years later) will be about a year. both times the pain decreased drastically after I got my second shot (I get one once a month). As far as questions about sex I cannot answer because I am a virgin.

achilles2

[achilles2]

Also in addition to endo has anyone looked at interstitial cystitis?
http://www.orthoelmiron.com/what-is-ic

[misskay31]

So, you think I may be pain free after I get the second injection?? Did you ever notice a really bad on either side in like the middle of your back?? I had a severe pain on my right side and I could barely breathe for almost an hour it was sooo severe!!! Any major side effects I should possibly be on the look out for??
Anyone on here ever had pain with sex while on Lupron?? Any response would be greatly appreciated!!

[misskay31]

So, now I am being told I may have a cyst on my right ovary. That is is about to burst or already has burst. I was in the hospital for about 7 hours last night cuz of severe pain on my right side. They said that it is NOT an infection (Thank God for that). And that there has been no sign of an infection in my urine or blood for months and that I didn't have a kidney infection a few months ago!!

[achilles2]

I hope you can get the cyst removed. How big is it?

[misskay31]

They never told me! They just said it sounds like a cyst burst. I may have more than one. But I have NO idea!! I am going to have my family doc order a CT Scan when I see him next! I am tired of all these pointless Ultrasounds that don't show anything!! And all the blood work and hospital visits!! Will let you know when I know!
Did you even get sore breasts while in Lupron? They really effing hurt lately!! And i'm not sure why!!!

[jengotherbaby]

Hey! i did lupron, twice. the first time it didnt really work, i was still getting my period till the 6th shot, and i had the worst hot flashes, mood swings the first week after each shot. the first cycle i lost 25lbs, but durning the second cycle i gained it all back plus and extra 5lbs. after the second cycle i had no pain really, occasionally with sex, but not like before. i was even able to get pregnant. as far as your cysts they will def go away while you are on lupron, no period, is because of no estrogen, no estrogen means no cysts. you probably pcos. i have that too on top of endometriosis.  i have had many cysts burst. all they can do is put you on birth control for it.  and if you have endo a ct scan wont show crap, they only way to see it is to open you up. i went to 2 doctors and they both told me the same stuff.  and yeah you breast will be sore. and you may feel a little nausa after each shot. i use to get headaches here and there too. but i have to say the hot flashes were the worst part of the whole thing. as the months go on you'll get them more and more.

[misskay31]

What is pcos?? Is there any certain way of telling if a cyst burst or not? Im on Premarin and Medroxy hormone pills as well as the Lupron. So, I am still getting estrogen.

[misskay31]

So. Results are in!! I have a cyst on my right ovary that has burst already. I have one on my left side that may have burst already. I have 2 complex cysts one on both ovaries. The two are 3.5x3.7x3.5cm in diameters. 1 is 1.7x1.4x1.8cm in diameter with debris within it. It is hypoechoic. (what ever that means!!)
Have to go back for another ultrasound on 6 weeks to check them!! They also found blood in my urine and thinks it may be kidney stones!!

[jengotherbaby]

pcos- is polycystic ovarian syndrome. sounds like you have it. it is usually very painful depending on the size of the cyst when it bursts. i had one the siz of a plum burst while i was at work, i was in the bathroom and i stood up to pull up my pants and then it hit me. i fell into the wall, almost passed out. i got pale, dizzy and had cold sweats. pain subsided after a few days. usually they put you on birthcontrol to shrink them. they usually burst right before your period. or they shrink right after your period but can come back.

[misskay31]

Well, I have been in pain since July 3rd!!! Right around my right kidney!!! And nothing is working for the pain!!
Is there any way of knowing for sure if it is pcos?? I don't think I can go on birth control while on Lupron and the 2 hormone pills I am already on. I really hope it is not pcos!!

[jengotherbaby]

well when birth control didn't work for me, (i would still get my period all the time for long periods of time, or go 2 or 3 months without it) and i had many sonos that showed the cysts, and i had 2 big ones pop a year apart, the doctor diagnosed me with it. im actually confused at this point with lupron, because my doctor put me on it to stop my period, and put my body into menopause to stop the growth of endometriosis. so in a way it was like birth control. i dont think they would put you on anything else. honestly, nothing ever really stops the pain, after the cysts pop the fluid in it gets reabsorbed into your body, but they shouldve given you an antibiotic for it, thats what my doctor has done in the past incase of an infection, even if none showed in blood work or urine test. but if your having problems with your kidneys then you should see the urologist for it. oh and i just read some of your post over again, as far as sex, if your getting the shot once a month, there may be trouble in little china, get yourself some lube, there is a good chance of it being the sahara desert.  your hormones wont be there to keep you lubricated.

[misskay31]

Is there any for sure way of knowing if one bursts?? I have 2 pretty big ones on either ovary! And I'm worried that doing too much will make it burst! I don't know if it is my kidney or not!! But even still I am having a lot of pain in my right side mid back. Right around my kidney!! The only that I has seem to work at the moment is Tramacet!!
I don't think they are going to put me on Birth Control. I think they would have by now!
And I have no problem with down there, that I know of. I'm normally not "dry" when that happens. But I may try lube and see if it helps.
My doctor is getting me in for another ultrasound on my kidney to check it would again! Would an ultrasound show kidney stones if that is the cause of my constant pain!?!

[jengotherbaby]

i dont know if it would show kidney stones.  that is one thing ive never had.....you will feel them burst, even little ones you can feel burst, but the severity isnt as bad. im in the same boat as you have one that is a nice size and i have to be careful with my one year old jumping on me. but ive been told that just laughing can cause it to burst, walking, coughing...it doesnt take much.they may shrink before they burst though, so stay positive, even though i know its hard when your in pain all of the time.

[misskay31]

Nothing is being done or checked out til August 20th now!!! I was put on Tramacet for pain and it seems to be working!

[jengotherbaby]

ok, one day at a time. im glad your getting some relief.

[misskay31]

My period came and it is not as heavy or painful as it was last month!! I barely have bleeding and barely any pain!! Just have like bleeding almost like spotting and that's it! Gotta say, I'm loving it! Lol

[jengotherbaby]

the longer your on lupron the less you'll get of a period, and the pain should ease

[myaqureshi_kidsinneed38yahoocom134]

Lupron is a very powerful drug. Don't take it!!! I always tell fellow endometriosis sufferers that drugs and temporary fix surgeries are not the answer. Read-Stop Endometriosis and Pelvic Pain by the doctor himself-Andrew S Cook. Instead of giving temporary relief, he will cure your endometriosis. Most doctors are ridiculous but he actually cares and wants the best for you. I was at a chiropractor visit and the nurse was telling me about how her daughter has horrible endometriosis and that her surgery is next month by this same doctor. What are the odds. Lupron is making you pretend that the pain is not there like morphine. It is not curing the cause. Have a good diet, take advil way before your period starts, have hot water bottles and heating pads ready until your surgery to cure your endoemtriosis once and for all.

[misskay31]

Where can I find what he writes? I am seeing Dr. Leyland for my Endo. And the Lupron is just a step to finding out if my Endo is causing the really bad pain I have been having. It is the cause he will be taking other steps to cure me (I'm hoping). But I think it is working. I mean my period is less painful this month! It is just light spotting, it hasn't been heavy all month! Which in my books, is awesome! I have 2 more months of the Lupron/ hormone therapy. So, who knows, maybe it will be worth it to be on it!