Please Help

[lissy21]

hey, i am new here and in search of help,support,answers etc, ive just gone 21 and was recently diagnose with endo, after many many months of having stomach pain, irregular and heavy periods, nausea, fatigue and weight loss, i have being in hospital so many times had one op in oct09 to remove a hemorrhagic ovarian cyst, since then i never really picked up was in and out of hospital had ultrasounds and ct scans and all they could find was cysts that i had developed again this time on both ovaries but they said they   shouldnt really cause some of my symptoms i had so i was refurred to gastroenterologist and i was told it could be chrohns so they decided to do a laparoscopy in march10 they discovered it wasnt crohns it was my appendix which had twisted and attached itself to the wall of my stomach so they removed that but also found endo behind my uterus which was bleeding out(something like that, i was still abit drowsey after op lol) i have picked up so much since then but i still am not right and back to how i was before, i had a follow up scan end of march10 and saw my consultant april10 who told me the cyst on my left ovary had gone but the right had got bigger and formed loads other little ones inside and out and the ovary itself was really enlarged, he told me that they had really reached a dead end with me and there not sure where to go from here, he said its probly something ill either have to try and learn to live with or they can go down the road of removing the ovary and seeing what endo they can remove but they dont really want to do that because of my age and i still would like a family etc. currently i feel like i have being given all this bad news and left, im not sure what to do who to turn to and what to do for the best, i really dont want to lead a life in pain nor on lots of tablets and i really do want a family, any help,info or advice would really help me, thank you :-)  the last 3 days ive gone abit down hill with server stomach pain mainly on the right lower abdomen but does also run across the bottom of my abdomen, high temp and nausea, i did see doc yday and hes give me more tablets which do seem to have worked, i dont understand why i keep going downhill tho then im ok then back down etc, its so hard and seems so unfair, it is comforting tho that everyone on here understands and knows what its like tho and how it can make you feel so helpless and down.

[teddybears4ever2]

You know even if you have one ovary you can still have children.  I know many people who only had one ovary and went on to have many children.  I know that it is hard to hear that, but you shouldn't be so worried.  Also if you have a cyst it may make it hard for you to have kids at all.  So I would go ahead and have the surgery.  If all else fails you can have someone else carry a child for you or you can adopt.

[lissy21]

hey, well i ended up in hospital, came back out yday, had a ultrasound while in there they discovered i have what they said considerably large cysts on both my ovaries because theres not much of me really and then she laughed which at the time i didnt find quite funny if im honest and was told they were treating me as if i had a pelvic infection aswell, im on anti-biotics now so hopefully that will clear up soon if it is a infection, have being told to go back if nothing changes after ive finished the courses because they will 100% know then that its not a infection which personally i dont know if im taking all these tablets for no reason or not, also started my bcp to try supress my ovaries for few months, nurses say it might help, still being transfured by my doctor tho and awaiting a appointment for another scan in about 6weeks time, i was shocked at the way i was treated tho, because the new hospital has just being finished and they were moving over from the old one it felt like i was just shuved out and sent home because they didnt want to take all patients over, i heard one nurse say to another about a patient who looked really ill and in pain but was waiting for some results that if she looked ok to just send her home with her meds and tell her to come back if need be, i wont be going back to that hospital and am currently writing a letter of complaint as ive come out just in the same state as i went in, just being put on bcp, co-codamol 30/500, tramadol, metronidazole, doxycycline, cefalexin and diclofenac sodium which are all making me feel so sick its unbelieveable, ive tried eating more just to make sure i have enough food in my stomach with taking them, im sipping water, im trying ginger capsules, anything else i can try does anyone know.

[teddybears4ever2]

If you wait too long, you probably won't be able to have kids.  You will become so full of endo that no surgery will be able to remove it.  If there is a blockage that means to no periods and no periods means no kids.

[teddybears4ever2]

Even if you only have one ovary you can still have kids.  

[lissy21]

poppy21 im so sorry to hear what happened, i hope your ok, thank you for that link too, i will take a look :-) i will defo keep you updated and teddybears4ever2 thankyou for replying too, you are 100% right, it is so confusing and overwhelming etc, i am going through a bad patch atm, well the last 3days, ive taken my tablets as the docs told me too im using heat pads trying to do some light exercise coz ive heard that can help but nothings working, im at my wits end i just wonna cry all the time, i really dont know what to do, its like a constant sharp pain stabbing mainly on the lower right side of my abdomen with a dull achey pain across the bottom of my abdomen.  thank you so much for helping and for your advice.

[teddybears4ever2]

If you need someone to talk to you can feel free to send me a message.  I know what you are going though.  It wasn't so very long ago that I was new to this and was having a hard time.  Endometiroisis can be confusing and my advice to you is to make sure that you are dealing with a GYN who knows what they are doing.  I would look into seeing someone who is very well versed in this area.  

[poppy21]

Hay ya
Wow sounds like you have'n have crap time. i'm really sorry to hear about all the bad news aye. Well im still to this day not sure if i have endo as i was booked in 2 weeks ago to have a laparoscopy but never had it as i got preggie but misscariage a week later. I found this website really helpfull to answer any of my questions. there is also info on a diet that could help you    www.endo-resolved.com  just remember most the time endo comes back it's just a way to live life with it and a diet can help. Let me no hoe you get on :)