So confused...

[beth0277]

I am sort of freaking out...For the last few years, my doctor has suspected endo but I have never had the lapro (?) surgery to confirm it. I have 1 little boy who I did not have problems conceiving but I have always had super irregular cycles, kidney pain during my periods and rectal bleeding during my periods, which I know can be signs of endo.

Well, this morning I woke up and had HORRIBLE stabbing pain in my pelvic area. I went to the ER and they are fairly confident that I had an ovarian cyst that ruptured. The ultrasound showed fluid but it was difficult to see my left ovary. They said there was a "growth" near/on my left ovary that could be one of several things...

At first they thought it was in my fallopian tube and it was an ectopic pregnancy, but it was confirmed that it was not that. So they said it could be one of a few things...

Either the remainder of or a different cyst
Endometrioma (caused by endometriosis, basically the tissue growing up on ovary)
or a tumor

I am freaking out thinking it could be a tumor and I won't know anything until I get in with my gyn. I feel pretty confident that I do have endo, which would make sense for the endometrioma, but I always thought it was very difficult to see on an ultrasound (it was trans-vaginal).

Any words of advice, encouragement or experience?

[beth0277]

A little more information that might be helpful-

After reading the ultrasound report it says that it is a mass with both cystic & solid parts. I read online that these "complex" masses can often be hemorrhaging cysts where the blood can show up as looking "solid" on an ultrasound. I sure hope it is something like that.

Any advice would be great!

[dnikki0928]

Well the good news is that it does sound like endo - Endometriomas are well seen on the ovaries through a trans vaginal ultrasound. The first one I had was when I was 18 (2004) and I had surgery to remove it along with all the endo that had grown back (that was my second laparoscopy). Your GYN will most likely give you a few options:

-Birth Control
-Laparoscopy
-Depo Lupron
     Or any combination of these. Usually the doc will let the patient help decide what's best. It sounds like you are maybe wanting the lap to get a definitive diagnosis...? If you decide to have one done, you'll probably wait until your post-op appt. to decide which method you want to use to control the endo and your pain.

Your best bet is to try to get in with an actual endo specialist instead of a regular GYN or RE. There are about 10 in the United States. I went to one back in March and have not regretted it. I'll give you a website to check out and be sure to read through all of it. It has a lot of useful information especially if you're new to all of this. Anyways, seeing a specialist (even if you haven't been diagnosed yet) gives you the best chance of removing ALL endo and suspected spots. With a regular GYN, they laser off the surface of the endo and leave the remaing "roots" I guess you'd say. With the specialist the excise the endo and suspected spots, meaning they cut the affected tissue out. I know it's a lot to grasp, but if you have any questions feel free to contact me =)

http://centerforendo.com/index.htm