Aa
Worried! What are they missing?!
I'm 25 yo. A little over a year ago I began having bleeding during sex, any time I had an orgasm, and also other random times. My obgyn got my pap, an ultrasound, and a transvaginal ultrasound- she said there was nothing remarkable. I continued having that issue for about 4 months (Jan-April 2013) then it just stopped. During the random bleeding I would have cramps and bloating. I also had severe fatigue which was attributed to an extremely deficient vit d of 9. I continue to have this low vit d.
This year, in March, the problem began again. I was in a relationship (until a week ago) and the sex was painful and there was a lot of bleeding/cramping after.
My new obgyn said she saw a lot of inflammation during my exam and mentioned cervical dysplasia- the results came back as positive for HPV and high risk cervical cells. Since I was bleeding a lot during this first pap, they re-did it a week later and everything came back negative!! She then ordered a transvaginal ultrasound- they couldn't find my ovaries but that apparently was of no concern. The obgyn called and told me everything was normal and that's it.
I continue to have this random bleeding, especially during sexual arousal, lower back pain and feel miserable. I don't understand how there is no explanation for such a thing. It is uncomfortable to live with and I'm concerned that the doctors are missing something. It's been 2 years with these symptoms. At this point I'm not even sure what to ask my doctor.
Also, I'm on Yaz and have been since about 16yo as I had extreme pain during my periods and they were very heavy. Is there a chance this is endometriosis??
This year, in March, the problem began again. I was in a relationship (until a week ago) and the sex was painful and there was a lot of bleeding/cramping after.
My new obgyn said she saw a lot of inflammation during my exam and mentioned cervical dysplasia- the results came back as positive for HPV and high risk cervical cells. Since I was bleeding a lot during this first pap, they re-did it a week later and everything came back negative!! She then ordered a transvaginal ultrasound- they couldn't find my ovaries but that apparently was of no concern. The obgyn called and told me everything was normal and that's it.
I continue to have this random bleeding, especially during sexual arousal, lower back pain and feel miserable. I don't understand how there is no explanation for such a thing. It is uncomfortable to live with and I'm concerned that the doctors are missing something. It's been 2 years with these symptoms. At this point I'm not even sure what to ask my doctor.
Also, I'm on Yaz and have been since about 16yo as I had extreme pain during my periods and they were very heavy. Is there a chance this is endometriosis??
Welcome to the Endometriosis Forum.
When I read your story it reminds me a lot of me. I was diagnosed with Endo at 27 but lived with it for 14 yrs undiagnosed and I had symptoms from the age of 13.
I was diagnosed with mild dysplasia around 4 yrs ago. I had 2 paps that show mild grade cells, doctor wasn't too worried about it but I was because all the health conditions I have had. Long story short I was diagnosed with high grade lesions which were removed and came back again. I was bleeding every time I had sex which can be caused by dysplasia, Endo, Adeno, cervical erosion, STD etc. Finally had a leep to remove it as it was persistent.
So that being said it is possible the bleeding is from the cervix or a variety of things. I read this over and over again to try to figure out what was causing it and for me it was the cervix http://womenshealth.about.com/cs/menstruation/a/bleedaftersex.htm
If it doesn't show the link I will message you it. :)
When you were on Yaz did it help? Sometimes being on a BCP masks the Endo symptoms.
When you orgasm does it hurt or you bleed when you orgasm?
When I read your story it reminds me a lot of me. I was diagnosed with Endo at 27 but lived with it for 14 yrs undiagnosed and I had symptoms from the age of 13.
I was diagnosed with mild dysplasia around 4 yrs ago. I had 2 paps that show mild grade cells, doctor wasn't too worried about it but I was because all the health conditions I have had. Long story short I was diagnosed with high grade lesions which were removed and came back again. I was bleeding every time I had sex which can be caused by dysplasia, Endo, Adeno, cervical erosion, STD etc. Finally had a leep to remove it as it was persistent.
So that being said it is possible the bleeding is from the cervix or a variety of things. I read this over and over again to try to figure out what was causing it and for me it was the cervix http://womenshealth.about.com/cs/menstruation/a/bleedaftersex.htm
If it doesn't show the link I will message you it. :)
When you were on Yaz did it help? Sometimes being on a BCP masks the Endo symptoms.
When you orgasm does it hurt or you bleed when you orgasm?
Hey there-
Given your symptoms I would say that yes, these are concurrent with endometriosis symptoms. You need to see an endometriosis specialist. The only way to conclusively determine endo is through laproscopic surgery. It very rarely shows on any ultrasound, mri, ct, or xray and certainly not in blood or pap tests. I had HPV and cervical cancer when I was 19 which I had 3 surgeries for. 10 years later I was still having terrible symptoms (like you described to the power of ten) I completely lost my ability to function- could not work, or perform basic daily activities, sex was a no-go. I also have Crohn's disease so the docs passed it off as that until my scopes started coming back normal. I was finally referred to a pain specialist who listened to my symptoms and story and found it almost identical to that of his wife. He referred me to one of the best obgyn endometriosis surgeons in the country and she performed the surgery- confirming that I had stage 4 endo and it was absolutely everywhere- on my uterus, bladder, bowel, etc. I had two excision surgeries, the last in 2010 and was symptom free for 3.5 years. My symptoms returned 6 months ago and I am to have another surgery this summer after which I hope to conceive immediately.
Know that you are not alone and this is a disease that few docs understand, and can only be diagnosed through a lapreroscopy. You have to do a lot of research and find a good surgeon. Be a strong advocate for yourself (the squeaky wheel gets the oil) Seriously, this disease is insidious and took 7 years from me. The only way to relieve the symptoms is through excision- not laser surgery, not medication. So fight to get heard. You deserve it.
Keep posting- here for you...
Lu
Given your symptoms I would say that yes, these are concurrent with endometriosis symptoms. You need to see an endometriosis specialist. The only way to conclusively determine endo is through laproscopic surgery. It very rarely shows on any ultrasound, mri, ct, or xray and certainly not in blood or pap tests. I had HPV and cervical cancer when I was 19 which I had 3 surgeries for. 10 years later I was still having terrible symptoms (like you described to the power of ten) I completely lost my ability to function- could not work, or perform basic daily activities, sex was a no-go. I also have Crohn's disease so the docs passed it off as that until my scopes started coming back normal. I was finally referred to a pain specialist who listened to my symptoms and story and found it almost identical to that of his wife. He referred me to one of the best obgyn endometriosis surgeons in the country and she performed the surgery- confirming that I had stage 4 endo and it was absolutely everywhere- on my uterus, bladder, bowel, etc. I had two excision surgeries, the last in 2010 and was symptom free for 3.5 years. My symptoms returned 6 months ago and I am to have another surgery this summer after which I hope to conceive immediately.
Know that you are not alone and this is a disease that few docs understand, and can only be diagnosed through a lapreroscopy. You have to do a lot of research and find a good surgeon. Be a strong advocate for yourself (the squeaky wheel gets the oil) Seriously, this disease is insidious and took 7 years from me. The only way to relieve the symptoms is through excision- not laser surgery, not medication. So fight to get heard. You deserve it.
Keep posting- here for you...
Lu
Have an Answer?
You are reading content posted in the Endometriosis Community
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
Normal vaginal discharge varies in color, smell, texture and amount.
Bumps in the genital area might be STDs, but are usually not serious.
Chlamydia, an STI, often has no symptoms, but must be treated.
From skin changes to weight loss to unusual bleeding, here are 15 cancer warning signs that women tend to ignore.
