New MONO diag. But my hands are numb?

[FunniBunni]

I was recently diagnosed with Mono, but I have had an ongoing problem with my hands and fingers being tingly, and then being full on tingly and numb, to where I can't grip etc. Two separate things or possibly related?

Thanks for your input.

[PlateletGal]

I used to always get recurrent infections. One thing you can do (sounds weird, but it works for me) is when you feel that you are getting a URI or bronchitis, either take Cayenne Pepper capsules or add Cayenne Pepper liquid (they sell it online and in health food stores) in your water. Of course do so with your physician's blessing first... but of course ! A Naturopathic physician taught me this trick and it works for me every single time !

[FunniBunni]

Thanks for the info PlateletGal, I might try that gluten free diet, I don't drink, so no problem there.  I have bronchitis now for the second time since Feb. 2nd along with everything else.  It just wipes me out.  I am only 41 almost 42 and I feel like I'm 90, no I think there are 90 y/o who have more energy!  They want to send me to a Pulmonologist for Asthma and recurrent infections.  But the numbness and the Topamax really did start about the same time, and my sister takes Topamax and has the same side effect, so I think I'm ok in that respect.  Either that or I am in denial :o)

[PlateletGal]

For those of you who are still searching for a diagnosis and answers to your question, consider googling, "Co Cure's Good Doctor List" for a list of physicians in your area who rountinely treat fibro and/or CFS.

[PlateletGal]

I do think that the numbness is EBV related and not because of medications. I write this because I have had CFS for numerous years and have had paraesthesia in my hands and feet at times.

If you read about infections in MS and other autoimmune diseases, you will see that all of these illnesses involve infections and problems with the Central Nervous System.

You might want to consider going on a gluten free diet for at LEAST two weeks and see if some of your symptoms get better. One thing I know about CFS patients is that at some point in our illness, we don't tolerate gluten, alcohol or surgery well at all.

Best,

~PlateletGal

[FunniBunni]

I have come to the conclusion that the numbness is not related to my EBV, I believe it is a side effect to a medication that I take for migraine headaches called Topamax.  It is a very unsettling side effect, but I will accept it, because, I have had almost no migraines since getting on the full dosage of Topamax and I have suffered migraines since I was 5 and I am now 42 so for me it is a wonder drug. (ps yes I have had a CAT so no tumors, I know it is a long time to suffer from headaches.)

Ginak,  I really hope that you get feeling better soon, feeling like the ball in a game of pinball is awful, and I understand.  You can drop me a line any time I mean it.

Shawna

[ginak]

I too suffer with numbness, tingling, ringing in the ear and internal tremors. My titers for Epstein Barr were very high, all 3 levels. Right now, all I have been told is that I have EBV, low Vitamin D, and possibly some hyperthyroid issues. My neuro has done a full workup for MS. This has been going on since July. I am lost and tired of going from doctor to doctor.

[boron]

What are your symptoms, can you put them in a time frame...how and when did all start?
What are your exact EBV antibody levels?