Aa
Aa
A
A
A
Close
Avatar universal

ebv is horrible

let me tell u people ive had it for a year now. the symptoms you read about is only a quarter of it. my symptoms include white tonge, painful swollen lymph nodes , skin problems , testical pain , burning in buttocs, leg pain , lower back pain, hot flashes, mouth ulcers, dhiarrehia, red skin areas , all kinds of numbness and tingling in the body including the genital area. also eye

Ebv resembles all kinds of cancers and stds. i was brushed off and ignored by docs because they did no the seriousness of this virous and how long it actually affects you. i found it takes up to 2 years to go away after the age of 25 im 29 years old. I was treated very poorley at ers and doctors offices. There first assumption is aids , cancer or an std. when the docs tell you it goes away in 2 months its bull thats only  the beggining. maintain a good diet and multi vitamins everyday.
73 Responses
Sort by: Helpful Oldest Newest
Avatar universal
hi im 20 y old and have the same symptoms as many of the rest here have.
now i have been sick for about 3 months and feeling most of the time pretty fine (still have most of the symptoms and feeling sleepy most of the day).
but i have to say that the wors part of this was wondering if it is something else... :(  , it has been really hard mentally for me and i missed allot during that time/
hope we will get better soon!
Helpful - 0
Avatar universal
EBV or MONO is worst illness I ever had !!! For 2 years I am not the same man !!! I got dizziness, mind lost hard to concentrate at all !!! I didn't feel my legs and arms and lips almost 6 months !!! I now have a fatigue worse in my life, dizziness and weak muscles like grand person !!! I was strong and do 100 exercises for arms in two minutes now I can not do 10 !!! I done all posible tests blood MRI EEG and all is normal but I feel like I am in concrete!
This is sad for me I didn't deserve this torture !!! I woke up in evening thinking I am dying feel all my body numb even the glass of water is hard so I can feel heaviness !!! My hair falls, my skin is scratched and dry, my eyes are dry to I have a heart irregular beat... So what a **** is with me ??? Epstein Barr destroy my life !!!!
Helpful - 0
Avatar universal

High viral titers (and bacterial) are often seen in chronically ill patients. You may want to consider copying and pasting your question for Prof. Garth Nicolson, an expert on these infections and the role they play in CFS, fibromyalgia and autoimmune diseases. Prof. Nicolson is answering questions in the autoimmune diseases (expert) forum here in MedHelp.

Helpful - 0
992988 tn?1249418572
Wow... I can't believe I have finally found others like me. It started about a month ago with tingling hands and feet. Then the tingling spread up the calves and forearms. Now there is aching, stinging and numbness all over my body. About 2 weeks ago my lymph nodes in my neck started swelling and aching. I just went to my neurologist today for the results from an EMG test and massive amounts of blood tests. My EMG showed that I had inflammation in my peripheral nerves. My blood test were negative for heavy metals, vitamin deficiencies, autoimmune diseases, Lyme and Lupus, but POSITIVE FOR EBV. Has anyone else had a similar story?
Helpful - 0
Avatar universal
EBV, Like many of you have stated doctors  tend to overlook the illiness. Unfortunately,we are living in the age of massive diseases and frankly they do not seem to give a darn about those who have them.They connect EBV with fiboro in women,mono in everyone.I am tired all the time and I have gain weight.The medications that I am on for high blood pressure,high blood sugar,herated disk in my neck and back,carpal tunnel syndrome hands,numbness in my feet,depression dealing with shut off energy notices due to no money waiting for SSA   to approve for my physical ailaments I must play the back and forth dance with them this has been going on for a great while on and off 10 years 3 years and a lawyer.I am tired of asking for help and the church has turn me down for assistance because I do not have a steady income I just want them to pay for this months starting new program $545.00 and 358 a month until pay off and my son and his family is moving back home next week and they are due to shut the power off today and I have been praying to God for help. My Cats have fleas and I must remove them out the house before my grand baby move here with me. I am very tired.Everyone look at me and feels I am healthy and I do not win and complain about my illiness.Some folk think we are lying about our illiness.We are avoiding to work.But we are not i could have contracted it in 2005 I had to have 9 blood transfusions I was the "woman with the issue of blood of 2005 I bled so much could stop any more.the female doc I had was from a different country and felt that I didnt need help with my husband who was a multi stroke pt,parkensens disease,diabetes,high blood pressure and here I was bleeding to death.they could only issue me help if the doctor wrote that I needed help .She refused. I change doctors.One of the doctors from her country(India,Pakastine eastern ) explain  to me why the female doctor refuse the male doctors did not refuse it was that female They do not hire out side people to take care of their love ones they take care of them themselves. American gov in 2005 wanted that for us but it has been very difficult my husband died Aug 2006. My son has blame me for his death some what I could not care for a total care patient I had my own health challenges to deal with. If you do not take care of your self no one else will.
Helpful - 0
Avatar universal
i hope that verything goes well, im sure its just the EBV, it mimics ALOT of illnesses, but it puts a huge toll on you, let us know how things go for you!
Helpful - 0
Have an Answer?

You are reading content posted in the Epstein Barr Virus (EBV) Community

Top Infectious Diseases Answerers
Avatar universal
CA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods