ebv is horrible

[happyguy12]

let me tell u people ive had it for a year now. the symptoms you read about is only a quarter of it. my symptoms include white tonge, painful swollen lymph nodes , skin problems , testical pain , burning in buttocs, leg pain , lower back pain, hot flashes, mouth ulcers, dhiarrehia, red skin areas , all kinds of numbness and tingling in the body including the genital area. also eye

Ebv resembles all kinds of cancers and stds. i was brushed off and ignored by docs because they did no the seriousness of this virous and how long it actually affects you. i found it takes up to 2 years to go away after the age of 25 im 29 years old. I was treated very poorley at ers and doctors offices. There first assumption is aids , cancer or an std. when the docs tell you it goes away in 2 months its bull thats only  the beggining. maintain a good diet and multi vitamins everyday.

[ginak]

Krissy,

It helps knowing that I am not crazy with all of the neurological stuff that I have going on. I too have EBV and low vitamin D. I haven't had my carnitine checked, but i am sure that it would be low as well if i were to get it checked. Well, thank you for sharing your story. I share many of those same symptoms. I am waiting to have more mris in September to make sure that nothing else has come up as a result of the EBV. I haven't had mris since last year in September, so I really think the neuro is looking for something else workse. I can hope and pray that EBV is all that I am dealing with.

Take care,

Ginak

[Krissy820]

yeah i couldn't ride it out, i started having hyperventilation attacks from the anxiety, and i couldn't eat from the nausea... it ***** big time.

[happyguy12]

wow 18 and you have all that . that *****. im approaching a year this month and i have all what u have . i dont take anything my doc just said ride it out

[Krissy820]

Hey all, i just wanted to give a little hope! I'm an 18yr old female, that has been struggling with epv, for over a year now, and i can tell you i know where you're all coming from. I have tingling, numbness, heart flutters, neurlogical issues, intestinal issues, (i've lost 50 lbs, since i've been diagnosed), along with white tounge, and pretty much any symptom you can get from ebv, ive had. I went through a long journey being diagnosed though because my immune system is down from the EBV and, it causes me to have sinitus, and ear infections all the time so doctors assumed it was something wrong with my ears, and after seeing my neurolgist, and had EXTENSIVE  testing for every autoimmune system out there, the only diagnoses he could give me was EBV, and vitamin D deficiency, along with a carnatine defieciency. I would definetly see a neurologist though, he has helped me so much with finding medications that work for me and currently im taking, Neurontin, (which has worked WONDERS on the numbness and tingling thing), I'm also taking Compazine, for nausea, and it also helps with keeping my intestinal system in check, I also take Ritalin in the mornings when i feel like I'm 60 yrs old, and cant move. ANd lastly, i take Ativan to help with the anxiety from all the symptoms. Since starting my meds, i have been able to return to school full-time, and be a mom to my two yr old monster again. The only thing i fear is a relapse, and that it won't completely go away. Has anyone had a really good streak with this virus that suddenly went to ****? my reason for concern is because I am now suffering once again from sinitus, and a double ear infection, and im taking a z-pack, but im not feeling better, or like my normal self. Any advice would be great thanks! btw- EBV *****!!! lol

[happyguy12]

really? do you the the garlic pills will work *** well?

[evo3623]

do you have tingling as well? what is your neuro symptoms?