pyloric stenosis scartissue(infant)causingproblemsin adult

[lindacarol]

Pyloric stenosis surgery at age 6 weeks. Now, as an adult, (age 42) severe gastro problems. Cramping, vomiting, extreme pain. "Attacks" come anywhere from every 3 or 4 months to 7 or 8 months. are very debiliting, and last several days. This has been going on for at least 15 years. Drs. could not find cause and even removed appendix, until someone thought it might be a result of the pyloric stenosis surgery as an infant and resulting scar tissue.  Is any one else who had this surgery in infancy experiencing these problems? Can anything be done?

[ljh446]

I had to respond to this because my husband just had gallbladder surgery and the surgeon came in to visit me and said the problems with his gallbladder were more from his ps surgery when he was 3 weeks old.  He removed his gallbladder and all the adhesions.  Basically the adhesions were causing the gallbladder problems.  I think he will be a new man.  We have had every test ran on him for all his gastro problems all our married life and before.  

[nurse_michelle09]

My daughter had PS when she was 3 weeks old, and now is 14 years old, having many problems with pain and bulging, she is having LOTS of reflux problems and we are headed to the Dr next week, I will repost when we get back....

[deb91953]

I also had poloric stenosis as an infant, adhesion surgery at age 5 and after 20 years of severe pain, vomitting...that comes and goes....may not have any pain for a year or two, then months of pain...finally my doctor sent me to hospital for possible exploratory surgery...surgeon did xray after two days of no solid food and found another blockage, more surgery, and I'm told this surgery may last 10 years, but be ready for more surgery to come. I am a female, and had absoutely no trouble with any pregnancies...all full term.  My orginial incision is middle of stomach about 4 inches long.

[Leeroy_mil]

Hey all,

Me n my twin bro had the same operation one at six weeks and mine a week or so earlier than his ( i was born five mins before him). I have the same problem with abdominal exercises, where my tummy seems to contract and spasm real tight. Then beats erratically like it has a pulse in their - a little random I know. My scar is a little to the right and of 4inches, lumpy, bumpy and still have staple marks - i presume the scar has stretched and filled with collagen as i have grown up, now 31. Paul's scar is more central and in much better condition than mine. i always seem to have a constant greasey spot that inflames at the lower part near my belly button. I am going to try and get scar revision on the nhs to try and relieve the tension and discomfort, is this possible and has anyone had it done. Thanks all Lee

[Vandy459]

Leeroy,
Sounds like adhesions could be the problem, but a good doctor could tell you. On Facebook there are several PS Groups and there's some feedback there from people who've had scar revision done. If it's adhesions, though, I'd be careful. One of the other PS discussions here at MedHelp has a blog from someone who has had 2 ops for adhesions since her PS surgery, and she thinks she's heading for another one. If you've got adhesions try to live with the discomfort, as every surgery brings a risk of more developing.
Best of luck.

[mpt82stahlman]

My daughter had pyloric stenosis at weeks old recovered quickly and seemed normal. She is now three years old and for the past six months i would say has had alot of problems. Her problems have mostly occurred during the night will she will awake with severe  abdominal pain and vomitting. The area around her 4-inch abdominal scar will be hard as a rock and she complains of pain right at that spot. This will continue through the night for usually about 3 to 4 days. She is usually fine in the daytime there have only been two instances taking place in the daytime. She was diagnosed with the flu this last time as i took her to the ER due to her abdominal pain being so severe...nothing was found on exrays, blood tests, or the upper GI...she sees her family dr in the morning where I am requesting to see a specialist...I just dont want my baby hurting so badly. help???????????????????????