Hiv? I don't know what to do anymore please help

[Alext2018]

Hi,

Where do I start... I've asked a different website for some help but this seems much more suitable.

In late April/early May of 2012, I slept with a girl who I was seeing, I was 20 at this time she was 23. I had two sexual encounters after this which I think were about 2/3 weeks later. Hard to remember exact.

Anyways, I contracted an NGU infection, from her, as there was a strange smell coming from her vagina, which I didn't notice until the very last time we had sex. Each time was unprotected, as she stated she was on birth control.

I had a horrible discharge that was coming from my penis, went urgently to NHS clinic and was admistered antibiotic injection, along with a full blood screening and chlamydia and gonnorhea. All negative, just an NGU infection. I was told to return to tests for hiv and other blood STDs a week or so later to rule out a window period, which now looking back was way too soon! But they didn't consider this a risky encounter as she was white female and also myself with no risky behaviour in past etc!

Follow up was negative and I was pleased. Anyway, I went abroad after that episode, to Spain and approx 4 weeks later I came down with an awful flu like illness. Night sweats, malaise, and head aches. I was really ill and prior to this I really had never been ill before like that, only the cold you get per year.

I panicked after reading that it could be hiv seroconversion, so when I got home from holiday I booked a private hiv test at a clinic. I had recovered but was very very concerned. So now, I think this was maybe, early August 2012? I tested positive for hiv on a finger prick rapid test 4th gen, for antibodies. I was shocked. However the Doc then gave me the 3rd gen finger prick for only antibodies and it was neg. blood was drawn and sent to lab for further analysis. The exact same test kit was positive again, but two other kits were negative!? It was classed as indeterminate and repeat testing was advised via the lab. The doc was certain that this was a false positive but said feel free to test again.

I then went off to university in September 2012 and started to notice strange symptoms that I had never experienced. No appetite, fatigue, white coated tongue and just generally not feeling good at all! So I really got upset and decided to rush back home and re test, this was mid sept, the resulsts, all negative. This also included all other stds, everything.

I still had symptoms though, they were the things making me worried as I was ready to just move on etc. I continued testing for the rest of 2012 and until one year exact post exposure because I wanted to be certain, and also not put anyone else at risk. All negative.

I moved on with this after that, was happy I'd done all I could to be 100% sure. But my throat, tongue are so bad, still to today, thick white coating which is basically thrush, I've seen docs since then constantly and they have no idea what is up. I've tested for hiv again a couple of times in 2015,16 and this year to double check again on Doc advice, all clear. All blood tests for generic testing are normal, cd4 count was 793, I even tested for RNA in private clinic, all hiv clear.

So can anyone advise what I should now do? The problem is- I'm very tired all the time, still very very low appetite even after 6 years. My symptoms are still really weird, scabs coming off scalp, and hands, jock itch on occasions. Thick white coating on tongue which I can scrape off but it grows back every day, it looks certain to be thrush to me, it's horrible because I can't drink or have fun anymore because it proliferates so much and makes me feel awful! My kidney function is the only thing that isn't optimal, slight mild impairment. I wish I could just know what is wrong?! 6 years nearly this has gone on and I've had no real help from docs, I've tried fluconazole, nystatin etc, not really seen a major improvement. Docs are certain that something isn't right as my throat is very very inflamed but they are not 100% if it's thrush due to no improvement on meds or no white patches elsewhere on mouth, except for the tongue. Any help? I just want someone to give me some insight as to their opinion etc. Could this still be hiv related??  I just want some help because I'm so lost and fed up living an impeded life due to these symptoms. I am due to see my GP again next Tuesday, and I will be demanding some form of further investigation as I can't go on like this.

I've had since the exposure in 2012, around 10 negative hiv tests. Obviously the 4th gen false positives in 2012, but that does not show up now on the exact same tests kit.
One was negative rna viral load
CD4 was 793
My wbc has been in normal levels- specifically lymphocytes looks in good shape no problem there.
Thanks for any help, much appreciated x

[CurfewX]

The best thing you can do is to STOP thinking about HIV, and to stop correlating your symptoms with this sexual event.  You have tested conclusively negative for HIV, as AnxiousNoMore stated.  STOP testing for HIV.

When you stop linking your symptoms with this sexual event, you can get to the true cause of your health issues, which isn't HIV.  If you keep focusing on HIV as the cause, you will never be able to find the true cause.

[AnxiousNoMore]

HIV doctors can't diagnose from symptoms due to multiple potential illnesses so you and I can't either. It is time for you to stop trying to work up an HIV theory from body examination.
You tested multiple negatives in 2012, 15 and 16. You do not have HIV. Finished with that subject.
Anyone can develop scabs and itches or throat issues.

You outlined the only problem here, so the only option is for you to continue discussing it with them or new doctors:  
"Docs are certain that something isn't right as my throat is very very inflamed but they are not 100% if it's thrush due to no improvement on meds or no white patches elsewhere on mouth, except for the tongue."