Sorry to read of the suffering.. I have no knowledge on insulin level or how to deal with low blood pressure, but given the danger of passing out (falling) and possible worse I think you should discuss a pacemaker with your cardiologist. I have read that the pacemaker is sometimes required even in the young, though more common in older/senior aged people. Guess the latter is true in general, I learn now that I am in the older category myself.
I do not have a pacemaker but I understand from those I know (all older) who wear a pacemaker the experience is that the PM hasn't caused them pain or other problems... none are taking care of infants or even young children so their physical demands are low.
Wishing you both a good solution, better a cure.