Aa
ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON statuses
Hello all:
I thought that it might be helpful to all of us ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON folks to post an abbreviated synopsis of their HCV and post-treatment clinical trial statuses when they find out something definitive about their viral load, with as much info as they might be willing to share. This is or the benefit of us ION-"X" people so we can see how we are all doing, as well as for the benefit of others waiting and hoping to see whether sofosbuvir plus ledipasvir with or without ribavirin for 8, 12, or 24 weeks will comprise a viable treatment strategy.
I was going to try to start building a list of what I could harvest from this site, but decided that some people may prefer that I not do that, so, if people want to share their ION1/ION2/ION3 (and even ELECTRON and LONESTAR phase 2 studies) HCV status, they can.
I was thinking that, as much as people may be willing to share, that forum name, gender, genotype, liver Bx status prior to start of treatment, in which trial you participated, treatment regimen, whether treatment-experienced or not, whether PI-experienced or not, and since post-treatment viral load is quasi-blinded, whether you got the 24-wk followup invite or the sux2BU notification, or post-treatment private viral load test outcome, or declared cured or relapsed, would be helpful to share with the Community here and provide useful information to them. My status follows this post.
Thanx, all!
I thought that it might be helpful to all of us ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON folks to post an abbreviated synopsis of their HCV and post-treatment clinical trial statuses when they find out something definitive about their viral load, with as much info as they might be willing to share. This is or the benefit of us ION-"X" people so we can see how we are all doing, as well as for the benefit of others waiting and hoping to see whether sofosbuvir plus ledipasvir with or without ribavirin for 8, 12, or 24 weeks will comprise a viable treatment strategy.
I was going to try to start building a list of what I could harvest from this site, but decided that some people may prefer that I not do that, so, if people want to share their ION1/ION2/ION3 (and even ELECTRON and LONESTAR phase 2 studies) HCV status, they can.
I was thinking that, as much as people may be willing to share, that forum name, gender, genotype, liver Bx status prior to start of treatment, in which trial you participated, treatment regimen, whether treatment-experienced or not, whether PI-experienced or not, and since post-treatment viral load is quasi-blinded, whether you got the 24-wk followup invite or the sux2BU notification, or post-treatment private viral load test outcome, or declared cured or relapsed, would be helpful to share with the Community here and provide useful information to them. My status follows this post.
Thanx, all!
Congratulations to both of you
Cheese - it hasn't cured all my ills either, but at least we've got rid of the disease which could have killed us. I don't know your other ills, but it's a huge achievement!
I think that recovery is gradual...
G
Cheese - it hasn't cured all my ills either, but at least we've got rid of the disease which could have killed us. I don't know your other ills, but it's a huge achievement!
I think that recovery is gradual...
G
Jan 2014, achieved SVR 24.
24 weeks 7977+5885 and Riba.
It has not cured all my ills, but there is a welcome improvement.
Cheese.
24 weeks 7977+5885 and Riba.
It has not cured all my ills, but there is a welcome improvement.
Cheese.
Well, I just got my 24 week post tx results and I'm still SVR.
Reminder: 12 weeks sof+led w riba
G1b
Have signed up for 3 year follow up study.
These trials are really the bomb!
Good luck to all
Reminder: 12 weeks sof+led w riba
G1b
Have signed up for 3 year follow up study.
These trials are really the bomb!
Good luck to all
I spent 13yrs being "monitored" before the trial & would welcome another three now that I am "cured"
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