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ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON statuses
Hello all:
I thought that it might be helpful to all of us ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON folks to post an abbreviated synopsis of their HCV and post-treatment clinical trial statuses when they find out something definitive about their viral load, with as much info as they might be willing to share. This is or the benefit of us ION-"X" people so we can see how we are all doing, as well as for the benefit of others waiting and hoping to see whether sofosbuvir plus ledipasvir with or without ribavirin for 8, 12, or 24 weeks will comprise a viable treatment strategy.
I was going to try to start building a list of what I could harvest from this site, but decided that some people may prefer that I not do that, so, if people want to share their ION1/ION2/ION3 (and even ELECTRON and LONESTAR phase 2 studies) HCV status, they can.
I was thinking that, as much as people may be willing to share, that forum name, gender, genotype, liver Bx status prior to start of treatment, in which trial you participated, treatment regimen, whether treatment-experienced or not, whether PI-experienced or not, and since post-treatment viral load is quasi-blinded, whether you got the 24-wk followup invite or the sux2BU notification, or post-treatment private viral load test outcome, or declared cured or relapsed, would be helpful to share with the Community here and provide useful information to them. My status follows this post.
Thanx, all!
I thought that it might be helpful to all of us ION-1 / ION-2 / ION-3 / LONESTAR / ELECTRON folks to post an abbreviated synopsis of their HCV and post-treatment clinical trial statuses when they find out something definitive about their viral load, with as much info as they might be willing to share. This is or the benefit of us ION-"X" people so we can see how we are all doing, as well as for the benefit of others waiting and hoping to see whether sofosbuvir plus ledipasvir with or without ribavirin for 8, 12, or 24 weeks will comprise a viable treatment strategy.
I was going to try to start building a list of what I could harvest from this site, but decided that some people may prefer that I not do that, so, if people want to share their ION1/ION2/ION3 (and even ELECTRON and LONESTAR phase 2 studies) HCV status, they can.
I was thinking that, as much as people may be willing to share, that forum name, gender, genotype, liver Bx status prior to start of treatment, in which trial you participated, treatment regimen, whether treatment-experienced or not, whether PI-experienced or not, and since post-treatment viral load is quasi-blinded, whether you got the 24-wk followup invite or the sux2BU notification, or post-treatment private viral load test outcome, or declared cured or relapsed, would be helpful to share with the Community here and provide useful information to them. My status follows this post.
Thanx, all!
I definitely would want to participate even though it is a drive to Chicago ! I told coordinator that I would if they wanted me to. Although I guess we could tell our primary dr to order a viral load test a year later if we so wanted to have one done.
Stay well.
Stay well.
Not sure if they're doing 3 yr follow ups in the UK. My family member who did a sofosbuvir+riba trial (VALENCE?) for G3 was not offered the follow up opportunity after his clear EOT 24 test
My EOT 24 (ION 1) test is in a couple of weeks, so I'll ask then. Interested to see if this is just a US-centric thing.
My EOT 24 (ION 1) test is in a couple of weeks, so I'll ask then. Interested to see if this is just a US-centric thing.
RE: your Dec 29th post
Once you go in for your EOT+24, they will probably be asking you if you would like to participate in the long term study. I can't remember if you were ION2 or not, but at least for me, which I presume encompassed any ION2, that study is GS-US-248-0122. I don't even think that the study is ION2 or ION-anything specific; it's just a 3yr SVR followup for anything Gilead.
Once you go in for your EOT+24, they will probably be asking you if you would like to participate in the long term study. I can't remember if you were ION2 or not, but at least for me, which I presume encompassed any ION2, that study is GS-US-248-0122. I don't even think that the study is ION2 or ION-anything specific; it's just a 3yr SVR followup for anything Gilead.
excellent. thanx for posting your SVR12 outcome. One last hurdle for you to jump -- EOT+24 -- fortunately,that hurdle is only six inches high -- only looks high when you're 12 wks away -- I think you'll clear it.
the end of a long hard road.....
got the call today 12 week EOT - SVR !!!!!!!
got the call today 12 week EOT - SVR !!!!!!!
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