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317787 tn?1473358451

Please help pegasys/pegintron question

Hello my riends I find myself confused and doc closedthe last time I treated I was on Pegysus Riba and a trial drug
This time Incivek, Pegintron and Rhibasphere As most told me Pegintron seems harder.   Turns out the admin person got the pegasys preauthorized but the PA wrote it for Pegintron. I feel as if I am on a trial again  In fact I have been told that when a new drug comes out they cant know all of the sx as it is no longer  in controlled atmosphere.  Seemed controlled to me.
I had set up delivery for my medication today I am down to last shot for Friday.  Sat by the door from 8 to 4:30, either I or my husband.  I dozed off for an hour, dozed off for the first time since Nov 28th whoo hoo, a positive!
I called Aetna told them we were still waiting.  I was told that while Pegasys had been approved the prescription was for Pegintron and they could not deliver.     Ok, to the question, can I switch to Pegasys after being on Pegintron since Sept 1st.  I never thought I would end up being the big whiner, I was all about learning from all of you wonderful people and providing comfort at the level I was able, I do have the knowledge that  Hector  has provided(shout out) Will B, willing or Cando, Ev. Eureka, Streamline 569or Ficyclist, NYGirl7 and many people I can not remember in the midst of anxiety but you know I usually send individual thank you msgs, just can't do it now, oh Hrsewspr Carolyn really apprecite emotional support.   I apologize I am very anxious.  Can you switch from pegintron to pegasys?  I will be doing shot 15th on Friday and no one is speaking to me
Thank all of you so much, I feel 85 right now and so confused alone and afraid would appreciate any response
Thank you
Dee
26 Responses
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148588 tn?1465778809
Great news !  :-)

I've always wondered about the 'freshness' issue with PegIntron. Mine had to be flown from the specialty pharmacy in Florida to El Paso, then all day in the FedEx truck until I finally would get it around 5 in the afternoon. In the beginning I remember it being packed with BlueIce type chill packs, but later it came without and I was told it wasn't necessary.
Helpful - 0
317787 tn?1473358451
Hello, today UPS delivered my meds to my neighbor 4 buildings away.
Thank Goodness my neighbors all know me and they brought me my meds
In the tracking it said that it had been delivered to me and I signed
When neighbor came to door, I hugged her about 5 times.
Took my shot, feels like the first time, perhaps this pegintron is fresher?..kept on ice?

Thank you all very much, I am hoping this is my last crises

Happy Holidays to all
Dee
Helpful - 0
317787 tn?1473358451
Finally, late this afternoon after more than 10 phone calls today I am expecting delivery tomorrow of my meds
The pharmacy where I go is shutting down on Wed the 22nd so that was why I was panicking.  I am unhappy with the doctors office as I feel I am managing my own care in the middle of an interferon haze
Again, thanks to all for your suggestions and support

Orphan Hawk, I have now pulled all my hair out, please save yours for your crises LOL

Dee
Helpful - 0
317787 tn?1473358451
Thank you bless you, so sorry too tired more soon
Love to ALL
Dee
Helpful - 0
317787 tn?1473358451
Bless you beeblessed, I thought that was what I was supposed to do, exactly as you have said, I do the same
If I thought there was someone out there reaching out in pain needing help I would feel awful
I am here because I am sick going through my second tx.  If  ican,  I help where I think I can, mainly just support and my experience
Thank you again, I find that typing is making me tired so I will have to stop my long winded detail oriented post (sigh of relief from the crowd) lol
Happy Holidays
Dee
Helpful - 0
665963 tn?1360723554
Hi Dee. I'm so sorry you're going thru this.  I admire your ability to evern deal with this situation.  I don't think I could right now.  And I want to say, you've been very kind to me and I appreciate it.  Treatment is a time to look after yourself first, and if you can help someone else fine, but, we have to be a little selfish when we go thru this.  Some people click and some not so much.  Maybe whoever accused you was having their own bad day.
Helpful - 0
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